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新冻结步态问卷的可靠性:帕金森病患者及其照顾者之间的一致性。

Reliability of the new freezing of gait questionnaire: agreement between patients with Parkinson's disease and their carers.

机构信息

Department of Rehabilitation Sciences, Katholieke Universiteit, Leuven, Belgium.

出版信息

Gait Posture. 2009 Nov;30(4):459-63. doi: 10.1016/j.gaitpost.2009.07.108. Epub 2009 Aug 5.

DOI:10.1016/j.gaitpost.2009.07.108
PMID:19660949
Abstract

Freezing of gait (FOG) is difficult to measure due to its unpredictable occurrence. This study investigated: (1) whether the new freezing of gait questionnaire (NFOG-Q) is a reliable measure of freezing by comparing patients' ratings with those of carers' and (2) whether adding a video improved its reliability. Non-demented people with Parkinson's disease (PD) (N=102) and their carers of similar age and cognitive status were recruited from movement disorders clinics in three countries. The NFOG-Q was administered to carers and patients independently before and after watching a video showing several examples of FOG. Patients had very high agreement between their pre- and post-video detection of FOG (Kappa=0.91). However, this was less than in carers (Kappa=0.79). The video had a significant influence (p=0.01) on the rating of FOG severity (duration) but not on the estimation of its functional impact. Post-video freezing severity scores in the 69 freezers showed high agreement with carers' scores (ICC=0.78 [0.65;0.87]). We conclude that the NFOG-Q is a reliable tool to detect and evaluate the impact and severity of FOG. Adding a video does not add to the sensitivity and specificity of FOG detection but influences the estimation of FOG severity.

摘要

冻结步态(FOG)难以测量,因为其发生具有不可预测性。本研究旨在:(1)通过比较患者、护理者的评分,评估新的冻结步态问卷(NFOG-Q)作为评估 FOG 的可靠工具的作用;(2)评估加入视频是否能提高其可靠性。我们从三个国家的运动障碍诊所招募了非痴呆的帕金森病(PD)患者(N=102)及其认知状态相似的护理者。在观看一段包含几种 FOG 示例的视频之前和之后,护理者和患者分别独立完成 NFOG-Q 问卷。患者在视频前后对 FOG 的检测具有很高的一致性(Kappa=0.91)。但这低于护理者(Kappa=0.79)。视频对 FOG 严重程度(持续时间)的评分有显著影响(p=0.01),但对其功能影响的评估没有影响。在 69 名出现 FOG 的患者中,视频后的 FOG 严重程度评分与护理者的评分具有高度一致性(ICC=0.78 [0.65;0.87])。我们的结论是,NFOG-Q 是一种可靠的工具,可用于检测和评估 FOG 的影响和严重程度。加入视频并不能提高 FOG 检测的敏感性和特异性,但会影响 FOG 严重程度的评估。

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