Helgason T, Bjornsson J K, Tomasson K, Ingimarsson S
Laeknabladid. 1997 Jul;83(7):492-502.
With increasing technology in medicine and possibilities to extend life, interest for studying health-related quality of life, i.e. the subjective well-being of patients against the background of their diseases, accidents or treatment, has increased. The purpose of this paper is to introduce a self administered test for health-related quality of life, the IQL (Icelandic Quality of Life), and to show how it differentiates between groups of patients and to encourage the use of such tests in clinical work and research. The reliability and validity of the IQL has been shown to be acceptable.
The IQL had 30 questions and visual analogue items which measure 11 aspects of health-related quality of life. Raw scores for each subscale and for the total test are transformed into T-scores in order to make results easily comparable. The test was administered to a total of 219 persons in four groups of patients and disabled.
The test differentiates the more severely ill and disabled persons from the less severely ill. Each subscale except pain differentiates the groups from each other, showing a specific profile for each group. There is a high correlation between health and social aspects of the test as well as between health and satisfaction with life and well-being. The health-related quality of life of alcoholics was lowest in this study.
The test can be used, both in research and clinical work, in spite of the fact that the current version of it has not been tried out in a representa nottive sample of the population. The test is included in an appendix.
Health is of major importance for the quality of life. Health-related quality of life needs to be studied in order to evaluate the patients fully and their need for health service as well as its effects.
随着医学技术的不断进步以及延长生命可能性的增加,人们对研究健康相关生活质量的兴趣日益浓厚,即患者在疾病、事故或治疗背景下的主观幸福感。本文旨在介绍一种用于健康相关生活质量的自我管理测试——冰岛生活质量量表(IQL),展示其如何区分不同患者群体,并鼓励在临床工作和研究中使用此类测试。IQL的信度和效度已被证明是可接受的。
IQL有30个问题和视觉模拟项目,用于测量健康相关生活质量的11个方面。每个子量表和整个测试的原始分数被转换为T分数,以便使结果易于比较。该测试共对四组患者和残疾人中的219人进行了施测。
该测试能够区分病情较重和较轻的患者及残疾人。除疼痛外,每个子量表都能区分不同组,显示出每组的特定特征。测试的健康方面与社会方面之间以及健康与生活满意度和幸福感之间存在高度相关性。在本研究中,酗酒者的健康相关生活质量最低。
尽管当前版本的测试尚未在具有代表性的人群样本中进行试用,但该测试可用于研究和临床工作。测试内容包含在附录中。
健康对生活质量至关重要。为了全面评估患者及其对医疗服务的需求及其效果,需要研究健康相关生活质量。