• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

家庭中遗传信息的社会共享:遗传性乳腺癌和卵巢癌的研究。

Social sharing of genetic information in the family: a study on hereditary breast and ovarian cancers.

机构信息

University Lille Nord de France, F-59653 Villeneuve d'Ascq, France.

出版信息

J Health Psychol. 2009 Oct;14(7):855-60. doi: 10.1177/1359105309340981.

DOI:10.1177/1359105309340981
PMID:19786511
Abstract

The present study assessed how preventive medical information about hereditary breast and ovarian cancer is spread within the family before actual genetic test results. Forty-two women (19 had a breast or ovarian tumor and 23 did not) were asked to fill out a questionnaire about: (1) the spread within the family of the medical information received during the consultation; and (2) the reasons for sharing this information. Results indicate that all of the women socially shared medical information with an immediate family member for preventive purposes, and generally not for seeking emotional or informative social support.

摘要

本研究评估了在实际遗传检测结果之前,预防性的遗传性乳腺癌和卵巢癌医学信息是如何在家庭内部传播的。42 名女性(19 名患有乳腺或卵巢肿瘤,23 名没有)被要求填写一份问卷,内容涉及:(1)在咨询过程中收到的医学信息在家庭内部的传播情况;(2)分享这些信息的原因。结果表明,所有女性出于预防目的,都会将医学信息与直系亲属进行社交分享,通常不是为了寻求情感或信息性的社会支持。

相似文献

1
Social sharing of genetic information in the family: a study on hereditary breast and ovarian cancers.家庭中遗传信息的社会共享:遗传性乳腺癌和卵巢癌的研究。
J Health Psychol. 2009 Oct;14(7):855-60. doi: 10.1177/1359105309340981.
2
[Information spreading about hereditary carriage of a BRCA1/2 mutation and ovarian cancer and rate of consultation of the concerned relatives].[关于BRCA1/2基因突变的遗传携带与卵巢癌的信息传播及相关亲属的咨询率]
Bull Cancer. 2008 Apr;95(4):395-402. doi: 10.1684/bdc.2008.0622.
3
We are talking, but are they listening? Communication patterns in families with a history of breast/ovarian cancer (HBOC).我们在交谈,但他们在听吗?有乳腺癌/卵巢癌家族史(HBOC)的家庭中的沟通模式。
Psychooncology. 2004 May;13(5):335-45. doi: 10.1002/pon.745.
4
Is family history related to preventive health behaviors and medical management in breast cancer patients?家族病史与乳腺癌患者的预防性健康行为及医疗管理有关吗?
Breast Cancer Res Treat. 2005 Mar;90(1):47-54. doi: 10.1007/s10549-004-2626-8.
5
Knowledge of risk management strategies, and information and risk management preferences of women at increased risk for ovarian cancer.对风险管理策略的了解,以及卵巢癌风险增加的女性的信息和风险管理偏好。
Psychooncology. 2005 Apr;14(4):249-61. doi: 10.1002/pon.840.
6
[Counselling, genetic testing and prevention in women with hereditary breast- and ovarian cancer. Interdisciplinary recommendations of the consortium "Hereditary Breast- and Ovarian Cancer" of the German Cancer AiD].[遗传性乳腺癌和卵巢癌女性的咨询、基因检测与预防。德国癌症援助机构“遗传性乳腺癌和卵巢癌”联盟的跨学科建议]
Zentralbl Gynakol. 2003 Dec;125(12):494-506. doi: 10.1055/s-2003-44815.
7
DNA screening for breast/ovarian cancer susceptibility based on linked markers. A family study.基于连锁标记的乳腺癌/卵巢癌易感性DNA筛查。一项家族研究。
Arch Intern Med. 1993 Sep 13;153(17):1979-87.
8
Intra-abdominal carcinomatosis after prophylactic oophorectomy in women of hereditary breast ovarian cancer syndrome kindreds associated with BRCA1 and BRCA2 mutations.与BRCA1和BRCA2基因突变相关的遗传性乳腺癌卵巢癌综合征家族中女性接受预防性卵巢切除术后的腹腔内癌转移
Gynecol Oncol. 2005 May;97(2):457-67. doi: 10.1016/j.ygyno.2005.01.039.
9
Genetic counseling in hereditary breast/ovarian cancer in Israel: psychosocial impact and retention of genetic information.以色列遗传性乳腺癌/卵巢癌的遗传咨询:心理社会影响及遗传信息留存情况
Am J Med Genet. 2002 Aug 1;111(2):147-51. doi: 10.1002/ajmg.10550.
10
Risk of ovarian cancer in BRCA1 and BRCA2 mutation-negative hereditary breast cancer families.BRCA1和BRCA2基因无突变的遗传性乳腺癌家族中患卵巢癌的风险
J Natl Cancer Inst. 2005 Sep 21;97(18):1382-4. doi: 10.1093/jnci/dji281.

引用本文的文献

1
Electronic health record access by patients as an indicator of information seeking and sharing for cardiovascular health promotion in social networks: Secondary analysis of a randomized clinical trial.患者获取电子健康记录作为社交网络中促进心血管健康的信息寻求与共享指标:一项随机临床试验的二次分析
Prev Med Rep. 2019 Jan 14;13:306-313. doi: 10.1016/j.pmedr.2018.12.011. eCollection 2019 Mar.
2
From older to younger: intergenerational promotion of health behaviours in Portuguese families affected by familial amyloid polyneuropathy.从年长者到年轻人:受家族性淀粉样多神经病影响的葡萄牙家庭中健康行为的代际促进
Eur J Hum Genet. 2017 Jun;25(6):687-693. doi: 10.1038/ejhg.2017.40. Epub 2017 Mar 22.
3
Latino men and familial risk communication about prostate cancer.
拉丁裔男性与前列腺癌的家族风险沟通
Oncol Nurs Forum. 2014 Sep;41(5):509-16. doi: 10.1188/14.ONF.509-516.
4
The importance of older family members in providing social resources and promoting cancer screening in families with a hereditary cancer syndrome.老年家庭成员在提供社会资源和促进遗传性癌症综合征家庭的癌症筛查方面的重要性。
Gerontologist. 2011 Dec;51(6):833-42. doi: 10.1093/geront/gnr049. Epub 2011 May 11.