Parker Oliver D, Demiris G, Wittenberg-Lyles E, Porock D
Department of Family and Community Medicine, University of Missouri, Columbia, MO 65212, USA.
Eur J Cancer Care (Engl). 2010 Nov;19(6):729-35. doi: 10.1111/j.1365-2354.2009.01142.x.
Inclusion of patients and caregivers in decisions related to the delivery of care is inherent in the hospice philosophy. Telemedicine technologies offer a potential solution to the challenges presented by the geographic distance between team meetings and the home environment. While inclusion requires additional coordination by the hospice team, it also offers an important opportunity to improve communication between the team and the patient and family. A modified conceptual model based on two previous frameworks is outlined to support patient and family involvement in hospice team meetings. Further research is suggested to determine the structural feasibility of patient and family involvement via videophone as well as the structural and procedural changes resulting from this inclusion. Finally, clinical outcomes and family evaluation of the inclusion experience need to be thoroughly researched before final conclusions may be reached.
临终关怀理念的内在要求是让患者及其照护者参与到与护理服务提供相关的决策中。远程医疗技术为解决团队会议地点与家庭环境之间的地理距离所带来的挑战提供了一种潜在的解决方案。虽然让患者及其照护者参与需要临终关怀团队进行额外的协调，但这也为改善团队与患者及家属之间的沟通提供了重要契机。本文概述了一个基于之前两个框架的改进概念模型，以支持患者及其家属参与临终关怀团队会议。建议开展进一步研究，以确定通过可视电话让患者及其家属参与的结构可行性，以及这种参与所带来的结构和程序上的变化。最后，在得出最终结论之前，需要对纳入患者及其家属的临床结果和家庭评估进行全面研究。
