Hwang Deborah, Teno Joan M, Clark Melissa, Shield Renée, Williams Cindy, Casarett David, Spence Carol
Brown University Providence, Rhode Island, USA.
Brown University Providence, Rhode Island, USA.
J Pain Symptom Manage. 2014 Dec;48(6):1100-7. doi: 10.1016/j.jpainsymman.2014.04.003. Epub 2014 May 9.
Nursing homes (NHs) are increasingly the site of hospice care. High quality of care is dependent on successful NH-hospice collaboration.
To examine bereaved family members' perceptions of NH-hospice collaborations in terms of what they believe went well or could have been improved.
Focus groups were conducted with bereaved family members from five diverse geographic regions, and included participants from inner city and rural settings, with oversampling of African Americans.
A total of 28 participants (14.8% African American, mean age 61.4 years) identified three major aspects of collaboration as important to care delivery. First, most (67.9%) voiced concerns with knowing who (NH or hospice) is responsible for which aspects of patient care. Second, nearly half (42.9%) stated concern about information coordination between the NH and hospice. Finally, 67.9% of the participants mentioned the need for hospice to advocate for high-quality care rather than their having to directly do so on behalf of their family members.
The important concerns raised by bereaved family members about NH-hospice collaboration have been incorporated into the revised Family Evaluation of Hospice Care, a post-death survey used to evaluate quality of hospice care.
养老院越来越多地成为临终关怀的场所。高质量的护理取决于养老院与临终关怀机构的成功合作。
从丧亲家庭成员认为进展顺利或可以改进的方面，研究他们对养老院与临终关怀机构合作的看法。
对来自五个不同地理区域的丧亲家庭成员进行了焦点小组访谈，参与者包括来自市中心和农村地区的人员，并对非裔美国人进行了过度抽样。
共有28名参与者（14.8%为非裔美国人，平均年龄61.4岁）确定了合作对护理提供至关重要的三个主要方面。首先，大多数人（67.9%）对知道谁（养老院或临终关怀机构）负责患者护理的哪些方面表示担忧。其次，近一半（42.9%）的人表示担心养老院和临终关怀机构之间的信息协调。最后，67.9%的参与者提到临终关怀机构需要倡导高质量护理，而不是让他们必须代表家人直接这样做。
丧亲家庭成员对养老院与临终关怀机构合作提出的重要关切已被纳入修订后的临终关怀护理家庭评估中，这是一项用于评估临终关怀护理质量的死亡后调查。
