医生使用家族病史数据的策略：拥有数据并不等同于使用数据。
Physicians' strategies for using family history data: having the data is not the same as using the data.
作者信息
Taber Peter, Ghani Parveen, Schiffman Joshua D, Kohlmann Wendy, Hess Rachel, Chidambaram Valli, Kawamoto Kensaku, Waller Rosalie G, Borbolla Damian, Del Fiol Guilherme, Weir Charlene
机构信息
VA Salt Lake City Health Care System, Informatics, Decision-Enhancement and Analytic Sciences Center (IDEAS 2.0), Salt Lake City, Utah, USA.
Department of Biomedical Informatics, University of Utah, Salt Lake City, Utah, USA.
出版信息
JAMIA Open. 2020 Oct 8;3(3):378-385. doi: 10.1093/jamiaopen/ooaa035. eCollection 2020 Oct.
OBJECTIVE
To identify needs in a clinical decision support tool development by exploring how primary care providers currently collect and use family health history (FHH).
DESIGN
Survey questionnaires and semi-structured interviews were administered to a mix of primary and specialty care clinicians within the University of Utah Health system (40 surveys, 12 interviews).
RESULTS
Three key themes emerged regarding providers' collection and use of FHH: (1) Strategies for collecting FHH vary by level of effort; (2) Documentation practices extend beyond the electronic health record's dedicated FHH module; and (3) Providers desire feedback from genetic services consultation and are uncertain how to refer patients to genetic services.
CONCLUSION
Study findings highlight the varying degrees of engagement that providers have with collecting FHH. Improving the integration of FHH into workflow, and providing decision support, as well as links and tools to help providers better utilize genetic counseling may improve patient care.
目的
通过探索初级保健提供者目前收集和使用家族健康史（FHH）的方式，确定临床决策支持工具开发中的需求。
设计
对犹他大学健康系统内的初级和专科护理临床医生进行了调查问卷和半结构化访谈（40份调查问卷，12次访谈）。
结果
出现了关于提供者收集和使用FHH的三个关键主题：（1）收集FHH的策略因努力程度而异；（2）记录做法超出了电子健康记录的专用FHH模块；（3）提供者希望从基因服务咨询中获得反馈，并且不确定如何将患者转诊至基因服务。
结论
研究结果突出了提供者在收集FHH方面的不同参与程度。改善FHH与工作流程的整合，提供决策支持，以及帮助提供者更好地利用遗传咨询的链接和工具，可能会改善患者护理。
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