Houston VA Health Services Research & Development Center of Excellence, The Houston Center for Quality of Care & Utilization Studies, Department of Veteran Affairs, Michael E. DeBakey VA Medical Center, Houston, TX, USA.
Patient Educ Couns. 2010 Jul;80(1):3-9. doi: 10.1016/j.pec.2009.10.018. Epub 2009 Nov 30.
Previous studies have shown racial/ethnic differences in preferences for end-of-life (EOL) care. We aimed to describe values and beliefs guiding physicians' EOL decision-making and explore the relationship between physicians' race/ethnicity and their decision-making.
Seven focus groups (3 Caucasian, 2 African American, 2 Hispanic) with internists and subspecialists (n=26) were conducted. Investigators independently analyzed transcripts, assigned codes, compared findings, reconciled differences, and developed themes.
Four themes appeared to transcend physicians' race/ethnicity: (1) strong support for the physician's role; (2) responding to "unreasonable" requests; (3) organizational factors; and (4) physician training and comfort with discussing EOL care. Five themes physicians seemed to manage differently based on race/ethnicity: (1) preventing and reducing the burden of surrogate decision-making; (2) responding to requests for "doing everything;" (3) influence of physician-patient racial/ethnic concordance/discordance; (4) cultural differences concerning truth-telling; and (5) spirituality and religious beliefs.
Physicians in our multi-racial/ethnic sample emphasized their commitment to their professional role in EOL decision-making. Implicitly invoking the professional virtue of self-effacement, they were able to identify racially/ethnically common and diverse ethical challenges of EOL decision-making.
Physicians should use professional virtues to tailor the EOL decision-making process in response to patients' race/ethnicity, based on patients' preferences.
既往研究表明,在生命终末期(EOL)医疗照护偏好方面存在种族/民族差异。本研究旨在描述指导医师 EOL 决策的价值观和信念,并探讨医师种族/民族与其决策之间的关系。
我们进行了 7 个包含内科医生和亚专科医生在内的焦点小组(3 名白种人,2 名非裔美国人,2 名西班牙裔美国人,共 26 名)。调查人员独立分析转录本、分配代码、比较研究结果、协调差异,并开发主题。
4 个主题似乎超越了医师的种族/民族差异:(1)强烈支持医生的角色;(2)应对“不合理”的请求;(3)组织因素;以及(4)医师培训和讨论 EOL 医疗的舒适度。有 5 个主题似乎根据种族/民族的不同而有所不同:(1)预防和减轻代理人决策的负担;(2)回应“尽一切努力”的请求;(3)医师-患者种族/民族一致/不一致的影响;(4)关于说实话的文化差异;以及(5)灵性和宗教信仰。
在我们的多种族/民族样本中,医生强调他们在 EOL 决策中的专业角色承诺。他们含蓄地援引自我克制的专业美德,能够识别出 EOL 决策中存在的具有种族/民族共性和多样性的伦理挑战。
医师应根据患者的偏好,利用专业美德,针对患者的种族/民族,调整 EOL 决策过程。