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与多发性硬化症患者交流参与相关的变量:回归分析。

Variables associated with communicative participation in people with multiple sclerosis: a regression analysis.

机构信息

University of Washington-Rehabilitation Medicine, Seattle, WA 98195, USA.

出版信息

Am J Speech Lang Pathol. 2010 May;19(2):143-53. doi: 10.1044/1058-0360(2009/08-0087). Epub 2009 Nov 30.

Abstract

PURPOSE

To explore variables associated with self-reported communicative participation in a sample (n = 498) of community-dwelling adults with multiple sclerosis (MS).

METHOD

A battery of questionnaires was administered online or on paper per participant preference. Data were analyzed using multiple linear backward stepwise regression. The dependent variable was an item response theory score of communicative participation measured by a subset of items from the Communicative Participation Item Bank asking respondents to rate how much their health condition interfered with participation in real-life speech communication situations. Thirteen independent variables were included in the model as self-reported symptoms: problems thinking, slurred speech, vision loss, pain, mobility, depression, fatigue, perceived social support, age, education level, employment status, gender, and MS duration.

RESULTS

Fatigue, slurred speech, depression, problems thinking, employment status, and social support were significantly associated with communicative participation, accounting for 48.7% of the variance.

CONCLUSIONS

Communicative participation is significantly associated with multiple variables, only some of which reflect communication disorders. If the goal of intervention is to improve communicative participation, intervention may need to extend beyond traditional speech-language pathology boundaries to include other health symptoms as well as personal, social, and physical environments.

摘要

目的

探讨与社区居住的多发性硬化症(MS)患者(n = 498)自我报告的交流参与相关的变量。

方法

根据参与者的偏好,通过在线或纸质问卷的方式对参与者进行问卷调查。采用多元线性逐步回归分析对数据进行分析。因变量为交流参与的项目反应理论得分,由交流参与项目库中的部分项目评估,要求受访者根据自身健康状况对其在现实生活言语交流情境中的参与程度进行评分。该模型纳入了 13 个独立变量,包括自我报告的症状:思维问题、言语不清、视力丧失、疼痛、行动能力、抑郁、疲劳、感知社会支持、年龄、教育程度、就业状况、性别和 MS 病程。

结果

疲劳、言语不清、抑郁、思维问题、就业状况和社会支持与交流参与显著相关,占方差的 48.7%。

结论

交流参与与多个变量显著相关,其中只有一些反映了沟通障碍。如果干预的目标是提高交流参与度,那么干预可能需要超越传统的言语病理学界限,包括其他健康症状以及个人、社会和物理环境。

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