HIV 感染者的经历：青年群体确定了从儿科向成人护理过渡的障碍。
The HIV experience: youth identified barriers for transitioning from pediatric to adult care.
机构信息
National Cancer Institute, Center for Cancer Research, National Institutes of Health, 10 Center Drive, Bethesda, MD 20892, USA.
出版信息
J Pediatr Psychol. 2011 Mar;36(2):141-54. doi: 10.1093/jpepsy/jsp129. Epub 2009 Dec 29.
Abstract
OBJECTIVE
The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care.
METHODS
Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status.
RESULTS
Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process.
CONCLUSION
Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.
摘要
目的
本研究旨在探索从儿科过渡到成人护理的 HIV 感染者青年的经历。
方法
对 59 名 HIV 感染者青年（平均年龄为 22 岁）进行了半结构化电话访谈，内容涉及过渡经历、人口统计学和健康状况。
结果
在过渡到成人护理的青年中，免疫功能（CD4）呈下降趋势，45%的人发现过渡比预期的更困难，32%的人找不到情感支持服务。青年们认为需要增加连续性护理、提供后勤援助、改善与提供者和照顾者的沟通，以及个性化管理他们的过渡过程。
结论
如果没有充分的准备，过渡过程可能会受到影响，从而导致潜在的严重健康后果。HIV 感染者青年寻求能够提供发展适当的过渡干预措施的成年提供者，这些措施涉及到失落、披露和性行为以及医疗需求。
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