从 VA 我的健康档案系统中汲取个人健康记录的卫生服务研究视角的经验教训。
Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system.
机构信息
Veterans and Consumers Health Informatics Office, Office of Health Information, Veterans Health Administration, US Department of Veterans Affairs, Washington, DC, USA.
出版信息
J Gen Intern Med. 2010 Jan;25 Suppl 1(Suppl 1):62-7. doi: 10.1007/s11606-009-1114-6.
Abstract
BACKGROUND
Personal health records (PHRs) are designed to help people manage information about their health. Over the past decade, there has been a proliferation of PHRs, but research regarding their effects on clinical, behavioral, and financial outcomes remains limited. The potential for PHRs to facilitate patient-centered care and health system transformation underscores the importance of embracing a broader perspective on PHR research.
OBJECTIVE
Drawing from the experiences of VA staff to evaluate the My HealtheVet (MHV) PHR, this article advocates for a health services research perspective on the study of PHR systems.
METHODS
We describe an organizing framework and research agenda, and offer insights that have emerged from our ongoing efforts regarding the design of PHR-related studies, the need to address PHR data ownership and consent, and the promotion of effective PHR research collaborations.
CONCLUSION
These lessons are applicable to other PHR systems and the conduct of PHR research across different organizational contexts.
摘要
背景
个人健康记录（PHR）旨在帮助人们管理有关其健康的信息。在过去的十年中，PHR 大量涌现，但有关其对临床、行为和财务结果影响的研究仍然有限。PHR 有可能促进以患者为中心的护理和医疗体系转型，这凸显了从更广泛的角度开展 PHR 研究的重要性。
目的
本文从退伍军人事务部工作人员的经验中汲取经验，评估 My HealtheVet（MHV）PHR，倡导从健康服务研究的角度来研究 PHR 系统。
方法
我们描述了一个组织框架和研究议程，并提供了我们在设计与 PHR 相关的研究、解决 PHR 数据所有权和同意问题以及促进有效的 PHR 研究合作方面所做的努力中出现的见解。
结论
这些经验教训适用于其他 PHR 系统和不同组织背景下的 PHR 研究。
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