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癌症患者获得优质医疗保健的障碍:对肿瘤社会工作协会成员的调查。

Barriers to accessing quality health care for cancer patients: a survey of members of the association of oncology social work.

机构信息

Department of Community Health & Family Medicine, University of Florida, Gainesville, Florida 32601, USA.

出版信息

Soc Work Health Care. 2010;49(1):38-52. doi: 10.1080/00981380903018470.

Abstract

The present article reports data from a cross-sectional survey of members of the Association of Oncology Social Work (AOSW) completed in May 2006. The purpose of the survey was to gather information on AOSW members' practice roles, the clients they serve, and their views on barriers cancer patients face in obtaining quality cancer care. The survey instrument was a self-administered 18-page survey disseminated online and by U.S. mail to members who did not provide e-mail addresses. The response rate to the survey was 62.3% (622/999). Reported barriers to quality cancer care are presented here in three categories: health system, social/environmental, and individual-level barriers. The majority of respondents reported health system barriers, specifically inadequate health insurance, as the major barrier to accessing quality health care for cancer patients. Among social/environmental barriers, inability to pay for treatment-related expenses was the major barrier. Among individual-level barriers, patients' fears and distress were the major barriers. The conclusions from this survey point to the critical role of oncology social workers in assisting cancer patients in overcoming the barriers to quality care and achieving optimum quality of life.

摘要

本文报告了 2006 年 5 月对肿瘤学会社会工作者协会(AOSW)成员进行的横断面调查的数据。调查的目的是收集关于 AOSW 成员实践角色、服务对象以及他们对癌症患者在获得高质量癌症护理方面面临障碍的看法的信息。调查工具是一份自我管理的 18 页调查,通过电子邮件和美国邮件分发给没有提供电子邮件地址的成员。调查的回复率为 62.3%(622/999)。这里报告了三个类别的优质癌症护理障碍:卫生系统、社会/环境和个人层面的障碍。大多数受访者报告说,卫生系统障碍,特别是医疗保险不足,是癌症患者获得高质量医疗保健的主要障碍。在社会/环境障碍中,无力支付与治疗相关的费用是主要障碍。在个人层面的障碍中,患者的恐惧和痛苦是主要障碍。这项调查的结论表明,肿瘤社会工作者在帮助癌症患者克服优质护理障碍和实现最佳生活质量方面发挥着至关重要的作用。

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