Brauer Eden, Pieters Huibrie C, Ganz Patricia A, Landier Wendy, Pavlish Carol, Heilemann MarySue V
University of California, Los Angeles.
School of Nursing, University of California, Los Angeles.
Oncol Nurs Forum. 2018 Mar 1;45(2):148-158. doi: 10.1188/18.ONF.148-158.
PURPOSE: To explore the transition to self-care among a sample of emerging adult cancer survivors after hematopoietic cell transplantation (HCT). .
PARTICIPANTS & SETTING: 18 HCT survivors who were aged 18-29 years at the time of HCT for a primary hematologic malignancy and were 8-60 months post-HCT participated in the study. The study took place in the hematology outpatient setting at City of Hope National Medical Center. .
METHODOLOGIC APPROACH: The authors conducted in-depth semistructured interviews and analyzed interview transcripts using grounded theory methodology. .
FINDINGS: Health-related setbacks following HCT disrupted not only participants' journey toward self-care, but also their overarching developmental trajectory toward adulthood. Physically, participants struggled with lack of personal space around caregivers, but felt unready to live on their own. Socially, they relied on multiple caregivers to avoid relying too much on any one person. Financially, participants worried about prolonged dependence and increased needs in the future. .
Nurses can support the transition to self-care among emerging adults after HCT by recognizing the broader developmental impact of their cancer experience.
探讨造血细胞移植（HCT）后成年初期癌症幸存者样本向自我护理的转变。
18名造血细胞移植幸存者参与了该研究，他们在因原发性血液系统恶性肿瘤接受造血细胞移植时年龄为18至29岁，且移植后8至60个月。该研究在希望之城国家医疗中心的血液科门诊进行。
作者进行了深入的半结构化访谈，并使用扎根理论方法分析访谈记录。
造血细胞移植后与健康相关的挫折不仅扰乱了参与者走向自我护理的进程，还打乱了他们迈向成年的总体发展轨迹。在身体方面，参与者因护理人员身边缺乏个人空间而感到困扰，但又觉得自己还没准备好独立生活。在社交方面，他们依赖多个护理人员以避免过度依赖某一个人。在经济方面，参与者担心长期依赖以及未来需求增加。
护士可以通过认识到癌症经历对成年初期患者更广泛的发展影响，来支持造血细胞移植后成年初期患者向自我护理的转变。
