van Breemen Camara
Canuck Place Children's Hospice, Vancouver, Canada.
Int J Palliat Nurs. 2009 Oct;15(10):510-4. doi: 10.12968/ijpn.2009.15.10.44888.
To be truly comprehensive, palliative care for children must address more than pain control and symptom management. Holistic care also encompasses attention to the child's relationships, hopes, fears and wishes. Parents and caregivers of dying children are generally the primary decision-makers in the child's care and can find the transition from active, to palliative care, particularly difficult. Nurses who understand the parents' perspective can better support them. Children reveal their hopes and fears through play. By being attuned to symbols and themes in play, nurses can better interpret the dying child's journey. Nurses can facilitate communication and connection between parents and child and thereby promote healing during the dying process.
要做到真正全面,儿童姑息治疗必须解决的不仅仅是疼痛控制和症状管理问题。整体护理还包括关注儿童的人际关系、希望、恐惧和愿望。濒死儿童的父母和照顾者通常是儿童护理的主要决策者,他们可能会发现从积极治疗过渡到姑息治疗特别困难。理解父母观点的护士能够更好地支持他们。儿童通过玩耍来展现他们的希望和恐惧。通过留意玩耍中的象征和主题,护士能够更好地解读濒死儿童的历程。护士可以促进父母与孩子之间的沟通和联系,从而在濒死过程中促进康复。