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为罹患癌症的儿童及青少年提供姑息治疗的护理层面。

The nursing dimension of providing palliative care to children and adolescents with cancer.

作者信息

Docherty Sharron L, Thaxton Cheryl, Allison Courtney, Barfield Raymond C, Tamburro Robert F

机构信息

Duke University, School of Nursing, Pennsylvania State University College of Medicine, Departments of Pediatrics and Public Health Sciences.

出版信息

Clin Med Insights Pediatr. 2012 Sep 25;6:75-88. doi: 10.4137/CMPed.S8208. Print 2012.

Abstract

Palliative care for children and adolescents with cancer includes interventions that focus on the relief of suffering, optimization of function, and improvement of quality of life at any and all stages of disease. This care is most effectively provided by a multidisciplinary team. Nurses perform an integral role on that team by identifying symptoms, providing care coordination, and assuring clear communication. Several basic tenets appear essential to the provision of optimal palliative care. First, palliative care should be administered concurrently with curative therapy beginning at diagnosis and assuming a more significant role at end of life. This treatment approach, recommended by many medical societies, has been associated with numerous benefits including longer survival. Second, realistic, objective goals of care must be developed. A clear understanding of the prognosis by the patient, family, and all members of the medical team is essential to the development of these goals. The pediatric oncology nurse is pivotal in developing these goals and assuring that they are adhered to across all specialties. Third, effective therapies to prevent and relieve the symptoms of suffering must be provided. This can only be accomplished with accurate and repeated assessments. The pediatric oncology nurse is vital in providing these assessments and must possess a working knowledge of the most common symptoms associated with suffering. With a basic understanding of these palliative care principles and competency in the core skills required for this care, the pediatric oncology nurse will optimize quality of life for children and adolescents with cancer.

摘要

为患有癌症的儿童和青少年提供的姑息治疗包括在疾病的任何阶段都着重于减轻痛苦、优化功能和提高生活质量的干预措施。这种护理最有效地由多学科团队提供。护士在该团队中发挥着不可或缺的作用,他们识别症状、提供护理协调并确保沟通清晰。提供最佳姑息治疗似乎有几个基本原则。首先,姑息治疗应从诊断开始就与根治性治疗同时进行,并在生命末期发挥更重要的作用。许多医学协会推荐的这种治疗方法有诸多益处,包括延长生存期。其次,必须制定现实、客观的护理目标。患者、家属和医疗团队的所有成员对预后有清晰的了解对于制定这些目标至关重要。儿科肿瘤护士在制定这些目标并确保所有专业都遵守这些目标方面起着关键作用。第三,必须提供预防和减轻痛苦症状的有效疗法。这只能通过准确且反复的评估来实现。儿科肿瘤护士在提供这些评估方面至关重要,并且必须具备与痛苦相关的最常见症状的实用知识。通过对这些姑息治疗原则的基本理解以及掌握这种护理所需的核心技能,儿科肿瘤护士将优化患有癌症的儿童和青少年的生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/18a1/3620813/43866cddd257/cmped-6-2012-075f1.jpg

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