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满足家庭护理者的需求:澳大利亚三种家庭姑息治疗服务的评估。

Meeting the needs of family carers: an evaluation of three home-based palliative care services in Australia.

机构信息

Centre for Palliative Care Education and Research, St Vincent's Hospital and The University of Melbourne, VIC, Australia.

出版信息

Palliat Med. 2010 Mar;24(2):183-91. doi: 10.1177/0269216309351467. Epub 2010 Jan 19.

Abstract

While policy promotes comprehensive assessment of family career needs and a plan to adequately meet family career needs within palliative care, there is a lack of studies in the Australian context which examine the current type of assessment and types of care provided to family carers. The aims of this study were (1) to determine how career needs are currently assessed and what level of support is available to family carers in three home-based palliative care services within Australia, (2) identify areas for improvement of support to carers and, (3) explore the barriers to offering career support. A focus group and file audit were conducted at two metropolitan and one regional home-based palliative care service in Australia. These palliative care sites reported substantially different levels of services provided to family carers and also reported multiple barriers to providing services for family carers. Only one site had a formal structured procedure to assess career needs and none of the sites used a separate career care plan or offered a structured intervention to assist carers with their role. Family meetings were offered infrequently by most sites. A number of barriers to supporting carers were highlighted including lack of resources, and areas for improvement were also suggested by health professionals from the sites.

摘要

尽管政策提倡全面评估家庭的职业需求,并计划在姑息治疗中充分满足家庭的职业需求,但在澳大利亚的背景下,缺乏研究来考察当前对家庭照顾者进行的评估类型和提供的照顾类型。本研究的目的是:(1)确定在澳大利亚的三个家庭姑息治疗服务中,目前如何评估职业需求以及为家庭照顾者提供的支持水平;(2)确定可以改进支持照顾者的方面;(3)探讨提供职业支持的障碍。本研究在澳大利亚的两个大都市和一个地区的家庭姑息治疗服务中进行了焦点小组和文件审核。这些姑息治疗机构报告了为家庭照顾者提供的服务水平存在很大差异,并且还报告了为家庭照顾者提供服务的多个障碍。只有一个机构有一个正式的结构化程序来评估职业需求,而且没有一个机构使用单独的职业护理计划或提供结构化干预措施来帮助照顾者履行其职责。大多数机构很少提供家庭会议。研究人员还强调了支持照顾者的一些障碍,包括资源匮乏,并且这些机构的卫生专业人员也提出了改进的领域。

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