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青少年癌症经历:失去控制与发现益处

The adolescent cancer experience: loss of control and benefit finding.

作者信息

Wicks L, Mitchell A

机构信息

Wellington Hospital, Wellington, New Zealand.

出版信息

Eur J Cancer Care (Engl). 2010 Nov;19(6):778-85. doi: 10.1111/j.1365-2354.2009.01139.x.

DOI:10.1111/j.1365-2354.2009.01139.x
PMID:20088922
Abstract

Developmental goals of adolescence include attaining confidence in independent decision making and a positive image of the self, others and surrounding world. A diagnosis of cancer during adolescence has the potential to impact on successful achievement of these goals. This study examined the 'adolescent cancer experience' from the perspective of young people. In-depth semi-structured interviews were conducted with 10 young people (16-22 years old) who had been diagnosed with cancer during adolescence. Thematic analysis of interview transcripts revealed two latent themes: loss of control and benefit finding. Adolescents reported that feelings of loss of control resulted in a sense of frustration, feelings of inadequacy and anger, and non-compliance with treatment. Perceived benefits of cancer experiences included improved personal attributes, strengthened relationships and material gains. These themes have not previously been well described in this population. The findings underline the need for effective communication, ongoing psychological support and service flexibility when providing care for adolescents with cancer.

摘要

青春期的发展目标包括在独立决策方面获得自信,以及对自我、他人和周围世界形成积极的形象。青春期被诊断出患有癌症可能会影响这些目标的成功实现。本研究从年轻人的角度审视了“青少年癌症经历”。对10名在青春期被诊断患有癌症的年轻人(16 - 22岁)进行了深入的半结构化访谈。对访谈记录的主题分析揭示了两个潜在主题:失去控制和发现益处。青少年报告称,失去控制的感觉导致了挫败感、不足感和愤怒感,以及不遵守治疗。癌症经历带来的感知益处包括个人特质的改善、人际关系的加强和物质收获。这些主题此前在这一人群中并未得到充分描述。研究结果强调了在为患有癌症的青少年提供护理时,进行有效沟通、持续心理支持和服务灵活性的必要性。

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