Nursing Department, University Hospital Zurich, Switzerland.
Eur J Oncol Nurs. 2011 Jul;15(3):260-6. doi: 10.1016/j.ejon.2009.11.001. Epub 2010 Jan 20.
The study assessed and compared the psychosocial needs of patients with breast cancer and of their relatives, the patients' and relatives' burden of illness, anxiety, depression and distress and assessed the patients' cancer treatment-related symptoms and identified relevant factors influencing patients' and relatives' needs.
Seventy-two patients (n=72) participated with a relative in a cross-sectional mail-survey, 1-22 months after cancer treatment.
The patients reported needing help with psychological and sexual issues. They suffered from treatment-related symptoms. More treatment-related symptoms and depression were related to the patients' needs for supportive care. Their relatives' needs primarily concerned access to information and communication with health care professionals. Relatives had higher levels of anxiety (25.0% vs. 22.2%), depression (12.5% vs. 8.3%) and distress (40% vs. 34%) than patients. Higher levels of depression, younger age and having a disease themselves were associated with relatives' need for help.
Patients' and relatives' substantial needs and psychological problems require professional support even after completion of the patients' treatment. Continued assessment of the patients' and their relatives' needs and of the patients' symptoms provide the basis for purposeful counselling and education. Rehabilitation programs for patients and their relatives should be developed and implemented in clinical practice.
本研究评估并比较了乳腺癌患者及其亲属的社会心理需求、患者和亲属的疾病负担、焦虑、抑郁和痛苦，并评估了患者的癌症治疗相关症状，确定了影响患者和亲属需求的相关因素。
72 名患者（n=72）在癌症治疗后 1-22 个月与一名亲属一起参与了横断面邮寄调查。
患者报告需要在心理和性问题方面得到帮助。他们遭受着与治疗相关的症状。更多的与治疗相关的症状和抑郁与患者对支持性护理的需求有关。他们亲属的需求主要涉及获取信息和与医疗保健专业人员沟通。与患者相比，亲属的焦虑（25.0%比 22.2%）、抑郁（12.5%比 8.3%）和痛苦（40%比 34%）水平更高。抑郁程度更高、年龄更小和自身患有疾病与亲属寻求帮助的需求有关。
即使在患者完成治疗后，患者和亲属的大量需求和心理问题仍需要专业支持。持续评估患者及其亲属的需求以及患者的症状为有针对性的咨询和教育提供了基础。应在临床实践中制定和实施针对患者及其亲属的康复计划。
