School of Rural and Northern Health, Laurentian University, Sudbury, Ontario, Canada.
Arch Phys Med Rehabil. 2010 Jan;91(1):143-8. doi: 10.1016/j.apmr.2009.08.152.
Young NL, Rochon TG, McCormick A, Law M, Wedge JH, Fehlings D. The health and quality of life outcomes among youth and young adults with cerebral palsy.
To describe the health and quality of life (QoL) of youth and young adults who have cerebral palsy (CP), and to assess the impact of 3 key factors (severity, age, and sex) on these outcomes.
Cross-sectional survey.
Participants were identified from 6 children's treatment centers in Ontario.
The sample of participants (N=199) included youth (n=129; age, 13-17y) and adults (n=70; age, 23-33y) with a broad range of severity: 35% mild, 19% moderate, and 47% severe.
Not applicable.
Health Utilities Index (HUI(3)), Assessment of Quality of Life (AQoL), and Self-Rated Health (SRH).
SRH was reported to be excellent or very good by 57% of youth and 46% of adults. Mean HUI(3) scores were .30 for youth and .31 for adults. Mean AQoL scores were .28 for youth and adults. Severity of CP in childhood predicted 55% of the variance in HUI(3) scores and 45% of the variance in AQoL scores. Age and sex were not significant predictors of health or QoL.
The observed health and QoL scores were much lower than those previously reported in the literature. This is likely a result of the inclusion of those with severe CP. The scores for youth were similar to those for adults and suggest that health and QoL outcomes were relatively stable across the transition to adulthood. Youth and adults with CP have limited health status and will require health care support throughout their lives to help them optimize their well being. Longitudinal follow-up studies are essential to understand better the patterns of health in this population over time.
描述患有脑瘫的青年和年轻成年人的健康和生活质量（QoL）结果，并评估 3 个关键因素（严重程度、年龄和性别）对这些结果的影响。
横断面调查。
参与者从安大略省的 6 个儿童治疗中心中被确定。
参与者样本（N=199）包括青年（n=129；年龄 13-17 岁）和成人（n=70；年龄 23-33 岁），他们的严重程度范围很广：35%为轻度，19%为中度，47%为重度。
不适用。
健康效用指数（HUI(3)）、生活质量评估（AQoL）和自我报告的健康状况（SRH）。
57%的青年和 46%的成年报告自我健康状况为优秀或非常好。青年的平均 HUI(3)评分是.30，成年的平均 HUI(3)评分是.31。青年和成年的平均 AQoL 评分均为.28。儿童时期 CP 的严重程度预测了 HUI(3)评分 55%的方差和 AQoL 评分 45%的方差。年龄和性别不是健康或 QoL 的显著预测因素。
观察到的健康和 QoL 评分远低于文献中先前报道的水平。这可能是由于包括了严重 CP 的患者。青年的评分与成年相似，表明健康和 QoL 结果在成年过渡期间相对稳定。患有脑瘫的青年和成年的健康状况有限，他们将需要终生的医疗保健支持来帮助他们优化他们的幸福感。纵向随访研究对于随着时间的推移更好地了解该人群的健康模式至关重要。
