Department of Occupational Health, Prevention and Reintegration, HAN University of Applied Sciences, NL-6503 GL Nijmegen, The Netherlands.
J Rehabil Med. 2010 Jan;42(1):60-5. doi: 10.2340/16501977-0482.
To determine the number of employed people in a group of patients with neuromuscular diseases and in 3 separate subgroups (facioscapulo-humeral dystrophy, hereditary motor and sensory neuropathy, and myotonic dystrophy) to investigate any differences in employment status between the patient groups, and to identify factors related to employment status.
Cross-sectional study.
A total of 591 patients with neuromuscular diseases participated in the study, 138 with facioscapulo-humeral dystrophy, 135 with hereditary motor and sensory neuropathy, and 318 with myotonic dystrophy.
Self-report questionnaires, the Checklist Individual Strength (CIS) and the Short Form-36 (SF-36).
Of the patients with neuromuscular diseases in the study, 56.7% were employed. Younger age, being male, and higher education contributed significantly to employment status of the neuromuscular diseases group and the hereditary motor and sensory neuropathy and myotonic dystrophy subgroups. Significant between-group differences for employed vs not employed subjects were present in the total neuromuscular diseases group on all subscales of the CIS and SF-36. Factors related to employment status differed for the 3 neuromuscular diseases subgroups.
More than half of the patients with neuromuscular diseases were employed. Patients with facioscapulo-humeral dystrophy and patients with hereditary motor and sensory neuropathy were more often employed than patients with myotonic dystrophy. Between-group analyses for differences in baseline factors revealed 11 significant factors related to employment. Multivariate logistic analyses revealed 6 factors contributing to employment for the group of patients with neuromuscular diseases.
确定一组神经肌肉疾病患者和 3 个亚组（面肩肱型肌营养不良、遗传性运动感觉神经病和强直性肌营养不良）中就业人数，以调查患者组之间就业状况的差异，并确定与就业状况相关的因素。
横断面研究。
共有 591 名神经肌肉疾病患者参加了这项研究，其中 138 名患有面肩肱型肌营养不良，135 名患有遗传性运动感觉神经病，318 名患有强直性肌营养不良。
自我报告问卷、个体力量检查表（CIS）和简明健康调查问卷 36 项版（SF-36）。
研究中神经肌肉疾病患者的就业率为 56.7%。年龄较小、男性和较高的教育程度对神经肌肉疾病组和遗传性运动感觉神经病和强直性肌营养不良亚组的就业状况有显著影响。在神经肌肉疾病组、遗传性运动感觉神经病和强直性肌营养不良亚组中，所有 CIS 和 SF-36 子量表上，就业者与非就业者之间存在显著的组间差异。与就业状况相关的因素在 3 个神经肌肉疾病亚组中有所不同。
超过一半的神经肌肉疾病患者有工作。面肩肱型肌营养不良患者和遗传性运动感觉神经病患者比强直性肌营养不良患者更常就业。组间基线因素差异分析显示，有 11 个与就业相关的显著因素。多变量逻辑分析显示，6 个因素对神经肌肉疾病患者的就业有贡献。
