Johnson K M, Berry E T, Goldeen R A, Wicker E
SCI Nurs. 1991 Apr;8(1):11-9.
Much of what we need to know to be independent adults is learned in the first five years of life. In the toddler, instead of reteaching learned skills, as we do with older spinal cord injury persons, we are teaching skills for the first time. It is therefore imperative to have a creative therapeutic team who can teach skills which were never acquired and encourage the child's cognitive growth as well as growth towards independence. This paper will include a case report of a 2 year-old C3-4 quadriplegic child rehabilitated through an interdisciplinary family-centered model of care. We will share some of the issues our team has encountered when "rehabilitating" very young children with spinal cord injuries based on the observations of the team members as well as the scant literature available. This will also include a parent's reflections of modification needed in family structure and roles.
我们要成为独立成年人所需了解的很多东西都是在生命的头五年学到的。对于幼儿，我们不像对待成年脊髓损伤患者那样重新教授已学技能，而是首次教授技能。因此，必须要有一个富有创造力的治疗团队，他们能够教授从未掌握的技能，并鼓励孩子的认知成长以及向独立发展。本文将包含一个通过跨学科家庭中心护理模式康复的2岁C3 - 4级四肢瘫痪儿童的病例报告。基于团队成员的观察以及现有的少量文献，我们将分享团队在“康复”非常年幼的脊髓损伤儿童时遇到的一些问题。这还将包括一位家长对家庭结构和角色所需调整的思考。
