Wong D L
J Pediatr Oncol Nurs. 1991 Jan;8(1):3-9. doi: 10.1177/104345429100800102.
Home care has become a well-accepted option for children with chronic illnesses, such as cancer, who require continued technological care for survival. Components of successful home care include assessment of the child and family for this option, assessment of the community's ability to provide the services the family needs, development of a comprehensive care plan, education of care givers, and ongoing evaluation of the plan. Nurses play a major role in the discharge planning for home care by educating care givers to perform the necessary care, by providing opportunities for care givers to demonstrate competence before assuming total responsibility, and by ensuring that the care givers and the home environment are ready for the child's discharge. Throughout this process, the principles of normalization are applied to provide the child with an optimun home environment. Establishing parent-professional partnerships is crucial to providing family support that empowers family members, especially parents, to assume the responsibilities of caring for their child.
对于患有慢性疾病(如癌症)的儿童来说,家庭护理已成为一种广为接受的选择,这类儿童需要持续的技术护理才能生存。成功的家庭护理包括评估儿童及其家庭是否适合这种护理方式、评估社区提供家庭所需服务的能力、制定全面的护理计划、对护理人员进行教育以及对该计划进行持续评估。护士在家庭护理出院计划中发挥着重要作用,包括教育护理人员执行必要的护理、为护理人员提供在承担全部责任之前展示能力的机会,以及确保护理人员和家庭环境为孩子出院做好准备。在整个过程中,应用正常化原则为孩子提供最佳的家庭环境。建立家长与专业人员的伙伴关系对于提供家庭支持至关重要,这种支持能使家庭成员,尤其是父母,有能力承担起照顾孩子的责任。