Alzheimer Europe, 145 route de Thionville, Luxembourg, Luxembourg.
J Nutr Health Aging. 2010 Feb;14(2):136-9. doi: 10.1007/s12603-009-0229-0.
To establish, in collaboration with national Alzheimer Societies in Europe, practical and consensual recommendations for the end-of-life care of people with dementia. The aim of these recommendations is to provide a basis for understanding and action with regard to end-of-life care not only for family caregivers but also for professionals, policy makers and anyone with an interest in palliative care.
A literature review was carried out by Alzheimer Europe in collaboration with a working group comprised of people from different backgrounds such as family caregivers, physicians, palliative care nurses and members of Alzheimer associations, who also prepared the draft recommendations during 4 sessions. These recommendations were then discussed with external experts and sent to Alzheimer Europe's member associations to be broadly discussed within their countries until a consensus was reached.
Alzheimer Europe is an umbrella association of European Alzheimer societies with 34 member associations in 30 different countries.
Not applicable.
Literature review, workshops, dissemination by e-mail and during conferences, consensus finding.
At the end of 2008, Alzheimer Europe prepared written recommendations on good end-of-life care for people with dementia. We are aware that this topic is challenging and that there is therefore a need for further discussion.
In this article we aim to present these recommendations and to invite professionals to consider these important issues and to contribute towards a broader discussion.
与欧洲各国的阿尔茨海默病协会合作，为痴呆症患者的临终关怀制定切实可行且达成共识的建议。这些建议的目的不仅是为了让家庭护理人员，还为专业人员、政策制定者和任何对姑息治疗感兴趣的人了解和采取临终关怀措施提供基础。
阿尔茨海默病欧洲协会与一个由来自不同背景的人员组成的工作组合作进行了文献回顾，这些人员包括家庭护理人员、医生、姑息治疗护士和阿尔茨海默病协会的成员，他们还在 4 次会议期间准备了建议草案。然后，这些建议与外部专家进行了讨论，并发送给阿尔茨海默病欧洲的成员协会，在其国内进行广泛讨论，直到达成共识。
阿尔茨海默病欧洲协会是一个欧洲阿尔茨海默病协会的伞式协会，在 30 个不同国家有 34 个成员协会。
不适用。
文献回顾、研讨会、电子邮件和会议传播、达成共识。
2008 年底，阿尔茨海默病欧洲协会为痴呆症患者的临终关怀制定了书面建议。我们意识到这个话题具有挑战性，因此需要进一步讨论。
在本文中，我们旨在提出这些建议，并邀请专业人士考虑这些重要问题，并为更广泛的讨论做出贡献。
