癌症患儿和青少年生活质量的进展。
Progress in quality of life in children and adolescents with cancer.
机构信息
Department of Nursing Research, Children's National Medical Center; Professor of Pediatrics, George Washington University, Washington, DC, USA.
出版信息
Semin Oncol Nurs. 2010 Feb;26(1):18-25. doi: 10.1016/j.soncn.2009.11.004.
OBJECTIVES
To describe the notable progress in conceptualizing, defining, and measuring quality of life (QOL) in children and adolescents with cancer during the past two decades.
DATA SOURCES
Published articles.
CONCLUSION
QOL in children and adolescents with cancer has been defined and conceptual frameworks developed; multiple generic and cancer-specific instruments have been validated for use in this patient population. Advances include a shift to patient reports as the preferred source of QOL ratings, and use of multiple data collection points in the same study to better document the trajectory of QOL in children and adolescents with cancer.
IMPLICATIONS FOR NURSING PRACTICE
This progress makes possible the study of interventions designed to improve the QOL of these young patients during and following treatment.
目的
描述过去二十年中儿童和青少年癌症患者生活质量（QOL）概念化、定义和测量方面的显著进展。
资料来源
已发表的文章。
结论
儿童和青少年癌症患者的 QOL 已经得到定义，概念框架也已经建立；已经为该患者群体验证了多种通用和癌症特异性工具。进展包括将患者报告作为 QOL 评分的首选来源，以及在同一研究中使用多个数据收集点来更好地记录儿童和青少年癌症患者 QOL 的轨迹。
对护理实践的意义
这一进展使研究旨在改善这些年轻患者在治疗期间和治疗后的生活质量的干预措施成为可能。
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