Hinds Pamela S, Burghen Elizabeth A, Haase Joan E, Phillips Celeste R
Division of Nursing Research, St. Jude Children's Research Hospital in Memphis, TN, USA.
Oncol Nurs Forum. 2006 Jan;33(1 Suppl):23-9. doi: 10.1188/06.ONF.S1.23-29.
PURPOSE/OBJECTIVES: To describe the notable advances in defining, conceptualizing, and measuring quality of life (QOL) in pediatric patients with cancer since the 1995 Oncology Nursing Society's State-of-the-Knowledge Conference on QOL.
Published research, clinical papers, and hospital policies.
QOL ratings from children and adolescents are being solicited increasingly in research and clinical assessments during treatment and survivorship using various methods but are not solicited from terminally ill patients; qualitatively induced models of pediatric cancer-related QOL now are being tested using quantitative methods.
Children aged five years and older are able to report their cancer-related QOL; reliable and valid QOL instruments exist for all phases of treatment except end of life.
Nurses can involve children and adolescents in rating their QOL for research and clinical purposes and can apply theory-based QOL models to direct care.
目的/目标：描述自1995年肿瘤护理学会关于生活质量的知识现状会议以来，在定义、概念化和测量癌症患儿生活质量（QOL）方面取得的显著进展。
已发表的研究、临床论文和医院政策。
在治疗和 survivorship 期间的研究和临床评估中，越来越多地使用各种方法征求儿童和青少年的生活质量评分，但未征求绝症患者的评分；目前正在使用定量方法测试定性诱导的儿科癌症相关生活质量模型。
5岁及以上的儿童能够报告他们与癌症相关的生活质量；除生命末期外，治疗的所有阶段都有可靠且有效的生活质量评估工具。
护士可以让儿童和青少年参与为研究和临床目的对他们的生活质量进行评分，并可以应用基于理论的生活质量模型来指导护理。
