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Electronic patient-reported outcomes for collecting sensitive information from patients.用于从患者收集敏感信息的电子患者报告结局。
J Support Oncol. 2009 May-Jun;7(3):98-9.
2
Response analysis for multiple symptoms revealed differences between arms of a symptom management trial.对多种症状的反应分析揭示了一项症状管理试验不同组之间的差异。
J Clin Epidemiol. 2009 Jul;62(7):716-24. doi: 10.1016/j.jclinepi.2008.09.007. Epub 2009 Jan 4.
3
Acceptability of an Electronic Self-Report Assessment Program for patients with cancer.癌症患者对电子自我报告评估程序的可接受性。
Comput Inform Nurs. 2008 Nov-Dec;26(6):332-8. doi: 10.1097/01.NCN.0000336464.79692.6a.
4
Managing symptoms among patients with breast cancer during chemotherapy: results of a two-arm behavioral trial.乳腺癌患者化疗期间症状的管理:一项双臂行为试验的结果
J Clin Oncol. 2008 Dec 20;26(36):5855-62. doi: 10.1200/JCO.2008.16.8872. Epub 2008 Nov 24.
5
The Queensland Cancer Risk Study: general population norms for the Functional Assessment of Cancer Therapy-General (FACT-G).昆士兰癌症风险研究:癌症治疗功能评估通用量表(FACT-G)的一般人群常模
Psychooncology. 2009 Jun;18(6):606-14. doi: 10.1002/pon.1428.
6
Patterns of sore mouth in outpatients with cancer receiving chemotherapy.接受化疗的癌症门诊患者口腔疼痛模式。
Support Care Cancer. 2009 Apr;17(4):413-28. doi: 10.1007/s00520-008-0509-y. Epub 2008 Oct 7.
7
Electronic health records in ambulatory care--a national survey of physicians.门诊医疗中的电子健康记录——一项针对医生的全国性调查。
N Engl J Med. 2008 Jul 3;359(1):50-60. doi: 10.1056/NEJMsa0802005. Epub 2008 Jun 18.
8
Depression screening using the Patient Health Questionnaire-9 administered on a touch screen computer.使用患者健康问卷-9在触摸屏计算机上进行抑郁筛查。
Psychooncology. 2009 Jan;18(1):14-22. doi: 10.1002/pon.1368.
9
Long-term toxicity monitoring via electronic patient-reported outcomes in patients receiving chemotherapy.通过电子患者报告结局对接受化疗的患者进行长期毒性监测。
J Clin Oncol. 2007 Dec 1;25(34):5374-80. doi: 10.1200/JCO.2007.11.2243.
10
Issues in the design of Internet-based systems for collecting patient-reported outcomes.用于收集患者报告结局的基于互联网的系统的设计问题。
Qual Life Res. 2007 Oct;16(8):1407-17. doi: 10.1007/s11136-007-9235-z. Epub 2007 Aug 1.

技术和生活质量的结果。

Technology and quality of life outcomes.

机构信息

Department of Biobehavioral Health Science, University of Illinois at Chicago, College of Nursing, Chicago, IL, USA.

出版信息

Semin Oncol Nurs. 2010 Feb;26(1):47-58. doi: 10.1016/j.soncn.2009.11.007.

DOI:10.1016/j.soncn.2009.11.007
PMID:20152578
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2853361/
Abstract

OBJECTIVES

To discuss recent technological advances in quality of life (QOL) data collection and guidance for use in research and clinical practice. The use of telephone-, computer-, and web/internet-based technologies to collect QOL data, reliability and validity issues, and cost will be discussed, along with the potential pitfalls associated with these technologies.

DATA SOURCES

Health care literature and web resources.

CONCLUSION

Technology has provided researchers and clinicians with an opportunity to collect QOL data from patients that were previously not accessible. Most technologies offer a variety of options, such as language choice, formatting options for the delivery of questions, and data management services. Choosing the appropriate technology for use in research and/or clinical practice primarily depends on the purpose for QOL data collection.

IMPLICATIONS FOR NURSING PRACTICE

Technology is changing the way nurses assess QOL in patients with cancer and provide care. As stakeholders in the health care delivery system and patient advocates, nurses must be intimately involved in the evaluation and use of new technologies that impact QOL and/or the delivery of care.

摘要

目的

讨论生活质量 (QOL) 数据收集方面的最新技术进展,并为研究和临床实践提供使用指导。本文将讨论使用电话、计算机和基于网络/互联网的技术来收集 QOL 数据的相关问题,包括可靠性和有效性问题以及成本问题,并探讨这些技术所涉及的潜在缺陷。

资料来源

医疗保健文献和网络资源。

结论

技术为研究人员和临床医生提供了一个机会,可以从以前无法获取的患者那里收集生活质量数据。大多数技术都提供了多种选择,例如语言选择、问题呈现格式选项和数据管理服务。选择适合研究和/或临床实践使用的技术主要取决于生活质量数据收集的目的。

对护理实践的意义

技术正在改变护士评估癌症患者生活质量并提供护理的方式。作为医疗保健系统的利益相关者和患者代言人,护士必须密切参与评估和使用影响生活质量和/或护理提供的新技术。