University of California, San Francisco, Department of Pediatrics, 500 Parnassus Ave, MU 4-East, Box 0136, San Francisco, CA 94143-0136, USA.
Pediatrics. 2010 Mar;125(3):e525-9. doi: 10.1542/peds.2009-1862. Epub 2010 Feb 15.
A gluten-free camp allows children with celiac disease (CD) to enjoy a camp experience without concern and preoccupation with foods they eat or the stigma of their underlying disease. The objective of this study was to evaluate the impact of gluten-free camp on quality-of-life indicators for children and adolescents with CD.
Children aged 7 to 17 years with CD were administered a 14-question survey at the beginning and the end of a 7-day gluten-free camp. Surveys used a Likert scale to examine general well-being, emotional outlook, and self-perception for the week before each survey. Differences between the time points were compared. Data were analyzed by paired t test.
Of the 104 campers who attended camp, 77 (21 male) completed the survey at both time points. Most (70%) had been on a gluten-free diet (GFD) for <4 years. All seemed to benefit from camp, no longer feeling different from other kids or feeling frustrated with a restricted diet. A more beneficial impact was found for campers who were on a GFD for <4 years. Overall, campers reported an improvement in 11 of 14 questions, statistically significant (P < .05) for 8 of those 11 questions. Improvement was observed in each of the 3 categories of questions: well-being, self-perception, and emotional outlook.
Children who had CD and attended a week-long gluten-free camp demonstrated improvement in well-being, self-perception, and emotional outlook. The positive effects of camp were more apparent among campers who had been on a GFD for <4 years compared with those who had been on a GFD for > or =4 years, suggesting an adaptation to CD with time. A gluten-free camp that provides an environment of unrestricted foods can at least temporarily alleviate stress and anxiety around food and social interactions. Durability of these observations on return to daily life requires additional study.
无麸质营地可以让患有乳糜泻 (CD) 的儿童在享受营地体验时无需担心和关注他们所吃的食物，也无需担心他们潜在疾病的耻辱感。本研究的目的是评估无麸质营地对 CD 患儿生活质量指标的影响。
7 至 17 岁的 CD 儿童在参加为期 7 天的无麸质营地前后，接受了一项包含 14 个问题的问卷调查。调查采用李克特量表，在每次调查前一周内检查总体健康状况、情绪前景和自我认知。比较了两个时间点之间的差异。采用配对 t 检验进行数据分析。
参加营地的 104 名营员中，有 77 名（21 名男性）在两个时间点都完成了调查。大多数（70%）接受无麸质饮食（GFD）<4 年。所有人似乎都从营会中受益，不再觉得自己与其他孩子不同，也不再对限制饮食感到沮丧。在 GFD 时间<4 年的营员中发现了更有益的影响。总体而言，营员报告在 14 个问题中的 11 个问题上有所改善，其中 8 个问题具有统计学意义（P <.05）。在幸福感、自我认知和情绪前景这 3 个问题类别中都观察到了改善。
患有 CD 并参加为期一周的无麸质营地的儿童在幸福感、自我认知和情绪前景方面均有所改善。在 GFD 时间<4 年的营员中，营地的积极影响更为明显，而在 GFD 时间≥4 年的营员中则不明显，这表明随着时间的推移，CD 逐渐适应。提供无限制食物环境的无麸质营地至少可以暂时减轻儿童对食物和社交互动的压力和焦虑。这些观察结果在返回日常生活中的持久性还需要进一步研究。
