Mennito Sarah H, Clark Jennifer K
Department of Internal Medicine, Medical University of South Carolina, Charleston, SC 29425, USA.
South Med J. 2010 Apr;103(4):339-42. doi: 10.1097/SMJ.0b013e3181d32356.
Every year more than 500,000 children with special health care needs (CSHCN), patients who need more consistent medical care or face significant consequences and complications, transition to adult-oriented providers. Yet these patients may encounter even greater difficulty in transitions of care than healthy adolescents and young adults, whether it is finding a provider who is comfortable managing their condition, re-establishing trust with a new provider, having providers address their unique psychosocial needs, or maintaining sufficient insurance coverage. Several models have been described with the goal of improving the transition process for patients, families, and providers. However, little evidence exists as to the actual impact of these programs on patient outcomes. This review highlights current understanding and expectations of transition for young adults with special health care needs, describes the state of transition medicine in South Carolina, and outlines areas for research and improvement on the local, regional, and national level.
每年有超过50万名有特殊医疗需求的儿童(CSHCN),即那些需要更持续医疗护理或面临重大后果及并发症的患者,向成人医疗服务提供者过渡。然而,这些患者在医疗护理过渡过程中可能比健康的青少年和年轻人遇到更大的困难,无论是找到一位能自如管理其病情的医疗服务提供者、与新的医疗服务提供者重新建立信任、让医疗服务提供者满足其独特的心理社会需求,还是维持足够的保险覆盖范围。已经描述了几种旨在改善患者、家庭和医疗服务提供者过渡过程的模式。然而,关于这些项目对患者结局的实际影响,几乎没有证据。本综述强调了目前对有特殊医疗需求的年轻人过渡的理解和期望,描述了南卡罗来纳州过渡医学的现状,并概述了地方、区域和国家层面的研究及改进领域。