青少年特发性关节炎门诊中从儿童护理向成人护理的过渡：一项归纳性定性研究。
Transition from child to adult care in an outpatient clinic for adolescents with juvenile idiopathic arthritis: An inductive qualitative study.
作者信息
Raunsbæk Knudsen Line, de Thurah Annette, Bjerrum Merete
机构信息
Department of Rheumatology Aarhus University Hospital Aarhus Denmark.
Department of Clinical Medicine Aarhus University Aarhus Denmark.
出版信息
Nurs Open. 2018 May 31;5(4):546-554. doi: 10.1002/nop2.164. eCollection 2018 Oct.
AIM
The aim of this study was to investigate experiences and needs in the transition from child to adult care in an outpatient clinic from the perspective of adolescents with juvenile idiopathic arthritis and their parents focusing on which aspects in the transition could ease the process.
DESIGN
A qualitative design with an inductive approach.
METHODS
Inductive content analysis was used to analyse individual interviews with three parents and three adolescents from a rheumatology clinic in Denmark.
RESULTS
Three descriptive categories emerged: "Information during transition," "Personalized care" and "A change of roles." The comparative analysis of the categories revealed two explanatory themes: "To move from something known to something unknown" and "To develop and change." We found that preparation for transition, information of organisational and procedural changes when entering adult care, continuity and relationships with health professionals characterised by trust as well as involvement of adolescents and parents will ease the process of transition.
目的
本研究旨在从患有青少年特发性关节炎的青少年及其父母的角度，调查门诊诊所中从儿童护理过渡到成人护理的经历和需求，重点关注过渡过程中哪些方面可以简化这一过程。
设计
采用归纳法的定性设计。
方法
采用归纳性内容分析法，对丹麦一家风湿病诊所的三位家长和三位青少年进行的个人访谈进行分析。
结果
出现了三个描述性类别：“过渡期间的信息”、“个性化护理”和“角色转变”。对这些类别的比较分析揭示了两个解释性主题：“从已知走向未知”和“发展与变化”。我们发现，过渡准备、进入成人护理时组织和程序变化的信息、连续性以及与以信任为特征的医疗专业人员的关系，以及青少年和父母的参与，将简化过渡过程。
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