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IMPACT注册研究:改善儿童及成人先天性疾病治疗

The IMPACT registry: IMproving Pediatric and Adult Congenital Treatments.

作者信息

Martin Gerard R, Beekman Robert H, Ing Frank F, Jenkins Kathy J, McKay Chuck R, Moore John W, Ringel Richard E, Rome Jonathan J, Ruiz Carlos E, Vincent Robert N

机构信息

Division of Cardiology at the Children's National Medical Center, 111 Michigan Avenue NW, Washington, DC 20010, USA.

出版信息

Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010;13(1):20-5. doi: 10.1053/j.pcsu.2010.02.004.

Abstract

Tremendous advances have occurred in catheter-based interventions for congenital heart disease. Multicenter trials of these advances are either out of date or have been limited in scope. As such little is known on the application of these techniques in the current era. The IMPACT Registry (IMproving Pediatric and Adult Congenital Treatments) will allow us to measure variability in the performance and outcomes of both diagnostic and interventional cardiac catheterization procedures in all children and adults with congenital heart disease. The IMPACT Registry will be harmonized with the Society of Thoracic Surgeons Congenital Heart Disease Database, thereby allowing us to compare catheter-based interventions with surgical interventions when appropriate. The initial release of the registry will only include hospital-based outcomes, but ultimately it will transition to a longitudinal registry. The IMPACT Registry will provide the necessary benchmark tools for quality improvement activities for cardiac catheterization procedures in congenital heart disease.

摘要

先天性心脏病的导管介入治疗已取得了巨大进展。关于这些进展的多中心试验要么过时,要么范围有限。因此,对于这些技术在当前时代的应用了解甚少。IMPACT注册库(改善儿科和成人先天性心脏病治疗)将使我们能够衡量所有先天性心脏病儿童和成人诊断性和介入性心导管检查程序在操作和结果方面的差异。IMPACT注册库将与胸外科医师协会先天性心脏病数据库进行协调,从而使我们能够在适当的时候将导管介入治疗与外科手术治疗进行比较。该注册库的初始版本仅包括基于医院的结果,但最终将转变为纵向注册库。IMPACT注册库将为先天性心脏病心导管检查程序的质量改进活动提供必要的基准工具。

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