Wynia Matthew, Dunn Kyle
University of Chicago, IL, USA.
J Law Med Ethics. 2010 Spring;38(1):64-73. doi: 10.1111/j.1748-720X.2010.00467.x.
Electronic health records for patients, personal health records (PHRs), have become increasingly popular among policy makers and purchasers, but uptake among patients and physicians has been relatively slow. PHRs have varying uses that might make them more or less appealing to different stakeholders. The three core uses for PHRs - promoting communication, data use, and patient responsibility - each raises a set of potential practical and financial dilemmas. But some ethical concerns are also at play, some of which are rarely recognized as values-based barriers to the use of PHRs. Recognizing these ethical issues, and addressing them explicitly in PHR design and policy making, would help PHRs to achieve their promise.
面向患者的电子健康记录，即个人健康记录（PHR），在政策制定者和购买者中越来越受欢迎，但患者和医生对其的接受程度相对较慢。PHR有不同的用途，这可能使其对不同利益相关者的吸引力有所不同。PHR的三个核心用途——促进沟通、数据使用和患者责任——每一个都引发了一系列潜在的实际和财务困境。但一些伦理问题也在起作用，其中一些很少被视为基于价值观的PHR使用障碍。认识到这些伦理问题，并在PHR设计和政策制定中明确解决这些问题，将有助于PHR实现其前景。
