School of Information, University of Texas at Austin, TX 78701, USA.
J Med Syst. 2012 Dec;36(6):3893-905. doi: 10.1007/s10916-012-9861-z. Epub 2012 May 30.
Currently, patients not only want access to various medical records their health care providers keep about them, but they also are willing to become active participants in managing their own health information and the health information of the ones they care for. Personal health records were developed to help fulfill this need. Health care professionals are instrumental in the successful adoption of PHRs. Nevertheless, a full understanding of different health care practitioners' views of PHRs, including how PHRs could fit into the existing health care system, is lacking. The purpose of this exploratory study is to investigate PHRs from the perspective of health care professionals. Twenty-one practitioners with 10 different specialties were interviewed. The results suggest that although PHRs were still a novel concept to the study participants, a majority of them did value information provided by patients and would recommend that patients keep such records. Participants with different specialties tended to look for different types of information to be included in PHRs, and wished the information to be presented in ways that supported their work, as well as supported knowledge discovery. The participants also expressed a need to share patient information, but had various concerns about sharing. The implications of the results of the study in regard to the design of future PHR systems are discussed.
目前，患者不仅希望能够访问医疗服务提供者为他们保存的各种病历，而且还希望积极参与管理自己和他们所关心的人的健康信息。个人健康记录的开发就是为了满足这一需求。医疗保健专业人员在成功采用 PHR 方面发挥了重要作用。然而，对于不同医疗保健从业者对 PHR 的看法，包括 PHR 如何适应现有医疗保健系统，缺乏全面的了解。本探索性研究旨在从医疗保健专业人员的角度研究 PHR。对 21 名具有 10 种不同专业的从业者进行了访谈。研究结果表明，尽管 PHR 对研究参与者来说仍然是一个新概念，但他们中的大多数人确实重视患者提供的信息，并会建议患者保留这些记录。不同专业的参与者往往会寻找不同类型的信息纳入 PHR，并且希望信息以支持他们工作以及支持知识发现的方式呈现。参与者还表示需要共享患者信息，但对共享存在各种顾虑。讨论了该研究结果对未来 PHR 系统设计的意义。
