Martin Molly, Beebe Jessie, Lopez Lolita, Faux Sandra
Department of Preventive Medicine, Section of Social and Community Medicine, Rush University Medical Center, Chicago, IL 60612, USA.
J Health Care Poor Underserved. 2010 May;21(2):464-74. doi: 10.1353/hpu.0.0285.
Puerto Rican children suffer higher asthma morbidity than children of any other racial/ethnic group in the U.S. This study was intended to describe asthma self-management behaviors in Puerto Rican youth. Key informant interviews (n=5) and focus groups (n=4) were conducted. Informants were community pediatricians and community-based organization employees. The focus groups included Puerto Rican parents of children with asthma, children with asthma in grades 4-8, and adolescents with asthma in grades 9-12 (32 participants total). Data were audio-recorded, transcribed, and translated. Two separate analysts performed theme extraction using naturalistic inquiry. Children were assuming asthma self-management responsibilities at very young ages. The adolescents felt they needed more parental assistance with their asthma. Asthma management techniques that involved manipulation of the environment or emotions were the most popular. Fear of asthma, need for more general education and smoking cessation resources, and community supports for asthma were discussed. These findings have important implications for future interventions.
波多黎各儿童的哮喘发病率高于美国任何其他种族/族裔群体的儿童。本研究旨在描述波多黎各青少年的哮喘自我管理行为。进行了关键 informant 访谈（n = 5）和焦点小组讨论（n = 4）。 informant 为社区儿科医生和社区组织员工。焦点小组包括患有哮喘儿童的波多黎各父母、4 - 8 年级的哮喘儿童以及 9 - 12 年级的哮喘青少年（共 32 名参与者）。对数据进行了录音、转录和翻译。两名独立的分析师使用自然主义探究法进行主题提取。儿童在非常小的年龄就开始承担哮喘自我管理责任。青少年觉得他们在哮喘方面需要更多父母的帮助。涉及环境或情绪调节的哮喘管理技术最受欢迎。讨论了对哮喘的恐惧、对更多一般教育和戒烟资源的需求以及社区对哮喘的支持。这些发现对未来的干预措施具有重要意义。
