Lay experiences and concerns with asthma in an urban Hispanic community.

BACKGROUND

National asthma guidelines are often not translated into practice. Barriers to translation impactboth provider and patient adherence.

PURPOSE

This qualitative study describes how perceptions and experiences of patients with asthma or their caregivers affect disease management in a Puerto Rican community in Buffalo, NY.

METHODS

Two community-based asthma workshops following a focus group format were conducted with 22 Puerto Rican adults with asthma or who cared for asthmatic children. A bilingual-bicultural community moderator used a semistructured interview guide to foster discussion on asthma definitions, triggers, management, coping and concerns. Four analysts interpreted data transcripts following the grounded theory approach, identifying salient thematic categories. Multiple analysts and a postsearch for conflicting evidence support analytical trustworthiness.

RESULTS

Perceptions of illness revealed concerns about the deceiving character and burden of asthma. Recognition of indoor household triggers underscored concerns about the impact on quality of life, emergency department use, and the ineffectiveness or side effects of some prescribed therapies. Misconceptions about asthma and self-management strategies were identified.

CONCLUSIONS

Learning about lay perceptions and management approaches regarding asthma may afford healthcare professionals insight to better understand, educate and care for ethnic minority patients, and help to improve their asthma outcomes.