Sekse Ragnhild Johanne Tveit, Raaheim Maalfrid, Blaaka Gunnhild, Gjengedal Eva
Department of Obstetrics and Gynaecology, Haukeland University Hospital, Bergen, Norway.
Scand J Caring Sci. 2010 Dec;24(4):799-807. doi: 10.1111/j.1471-6712.2010.00778.x.
The number of long-term survivors after cancer is increasing, mainly as a consequence of more efficient treatment. This creates a need for knowledge about experiences of life after cancer. The aim of this study is to gain a deeper understanding of lived experience of long-term cancer survivors and how they experienced cancer care. A qualitative study was performed, based on 32 in-depth interviews with 16 women declared as long-term survivors, aged 39-66. The first interview was made 5 years after treatment and the second a year later. The study has a phenomenological-hermeneutical approach in which the women's own experiences are the basis for understanding their life-world. The long-term surviving women experienced profound changes in their lives and had to adapt to new ways of living. Three core themes were identified: living with tension between personal growth and fear of recurrence: the women spoke of a deep gratitude for being alive and of basic values that had become revitalized. They also lived with a preparedness for recurrence of cancer. Living in a changed female body: the removal of reproductive organs raised questions about sexual life and difficulties related to menopause. Feeling left alone - not receiving enough information and guidance after treatment: the process of sorting things out, handling anxiety, bodily changes and menopause were described as a lonesome journey, existentially and psycho-socially. The findings are discussed in relation to Heidegger's perspective of anxiety towards death, existential loneliness and humans as self-interpreting beings. Surviving cancer entails living with profound life-changes, demanding as well as enriching. Existing follow-up regimes need to sharpen focus on psycho-social aspects, information and guidance. Additional follow-up programmes, focusing solely on the individual woman and her specific needs, are necessary.
癌症长期幸存者的数量正在增加，这主要是更有效治疗的结果。这就产生了对了解癌症后生活经历的需求。本研究的目的是更深入地理解长期癌症幸存者的生活经历以及他们对癌症护理的体验。我们进行了一项定性研究，基于对16名年龄在39至66岁之间被认定为长期幸存者的女性进行的32次深度访谈。第一次访谈在治疗后5年进行，第二次在一年后。该研究采用现象学 - 诠释学方法，其中女性自身的经历是理解她们生活世界的基础。长期存活的女性经历了生活中的深刻变化，不得不适应新的生活方式。确定了三个核心主题：在个人成长与对复发的恐惧之间的紧张状态下生活：这些女性表达了对活着的深深感激以及重新焕发生机的基本价值观。她们也时刻准备着应对癌症复发。生活在改变了的女性身体中：生殖器官的切除引发了关于性生活的问题以及与更年期相关的困难。感到孤独——治疗后未得到足够的信息和指导：梳理事情、处理焦虑、身体变化和更年期的过程被描述为一段在生存和心理社会层面上孤独的旅程。研究结果结合海德格尔对死亡焦虑、生存孤独以及人类作为自我诠释存在的观点进行了讨论。战胜癌症意味着要面对深刻的生活变化，既充满挑战又丰富多彩。现有的随访机制需要更加关注心理社会层面、信息和指导。有必要开展专门针对个体女性及其特定需求的额外随访项目。
