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医学注册研究:持续努力获取可靠的高质量数据。

Medical registries: continued attempts for robust quality data.

机构信息

Division of Thoracic Surgery and Thoracic Oncology, NYU Langone Medical Center, Department of Cardiothoracic Surgery, New York, New York, USA.

出版信息

J Thorac Oncol. 2010 Jun;5(6 Suppl 2):S198-9. doi: 10.1097/JTO.0b013e3181dcf957.

DOI:10.1097/JTO.0b013e3181dcf957
PMID:20502263
Abstract

Medical registries are useful to summarize retrospective or prospective data in a fashion that, on interpretation, could result in changes in the standard of care or highlight issues that must be further investigated in the management of certain diseases. Registries involve collection of data and registries are only as good as the fidelity of the data that are collected. There are a number of sources of error in registry formation. This brief review summarizes the errors that could influence the quality of the data in a registry and points out methods that could decrease those errors.

摘要

医学注册登记系统可用于总结回顾性或前瞻性数据,经解读后可能会改变疾病的常规治疗标准,或提示某些疾病管理中必须进一步调查的问题。注册登记系统涉及数据收集,而注册登记系统的质量取决于所收集数据的准确性。在注册登记系统建立过程中存在多种类型的误差来源。本简要综述总结了可能影响注册登记系统数据质量的误差,并指出了可减少这些误差的方法。

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