Institute of Health and Society, University of Oslo, Oslo, Norway.
Arthritis Care Res (Hoboken). 2010 Sep;62(9):1272-7. doi: 10.1002/acr.20216.
To examine the nature of fatigue and how it is managed in daily life situations by individuals with ankylosing spondylitis (AS).
Twelve informants, 8 women and 4 men ages 30-59 years, who had lived with the diagnosis of AS for 6 months to 36 years, participated in qualitative interviews. They were asked to describe their daily life during good and bad days of AS, and to give examples of everyday situations where they experienced fatigue and what they did to recover. The text analysis consisted of identifying and coding meaningful statements, sorting the codes into categories, and condensing themes.
Two separate conditions of fatigue were identified. One consisted of comprehensible, manageable tiredness related to a life strain that was exacerbated by having AS. Life strain-related tiredness indicated to the respondents that they should rest or temporarily slow down, and this protected them from overexertion. The other condition was an unfamiliar and unmanageable fatigue that was related to their illness. Illness-related fatigue was accompanied by unbearable pain, severe stiffness, and heaviness of the body that could not be alleviated by the individual. This condition was considered a sign of the onset or a flare up of inflammation.
Fatigue in the individuals with AS varied over time, and took the form of 2 different conditions. Life strain-related tiredness had a positive aspect in that it protected against overstrain and guided life strain regulation. In contrast, illness-related fatigue was nonpurposive for the individuals and seems to call for medical therapy.
探讨强直性脊柱炎（AS）患者在日常生活中疲劳的性质及其管理方式。
12 名参与者为年龄在 30-59 岁之间的女性 8 名，男性 4 名，他们被诊断患有 AS 已有 6 个月至 36 年。参与者接受了定性访谈，被要求描述他们在 AS 病情良好和不佳的日子里的日常生活，并举例说明他们在哪些日常情况下感到疲劳以及他们如何恢复。文本分析包括识别和编码有意义的陈述、对代码进行分类以及浓缩主题。
确定了两种不同的疲劳情况。一种是可理解的、可管理的疲劳，与生活压力有关，而 AS 会使这种疲劳加剧。与生活压力相关的疲劳表明，他们应该休息或暂时放慢速度，这可以防止他们过度劳累。另一种是不熟悉的、无法管理的疲劳，与他们的疾病有关。与疾病相关的疲劳伴随着无法忍受的疼痛、严重的僵硬和身体沉重，个体无法缓解这种疲劳。这种情况被认为是炎症发作或加剧的迹象。
AS 患者的疲劳会随时间变化，并表现为两种不同的情况。与生活压力相关的疲劳具有积极的一面，因为它可以防止过度劳累并指导生活压力的调节。相比之下，与疾病相关的疲劳对个体来说是无目的的，似乎需要医学治疗。
