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强直性脊柱炎中的疲劳:原因、后果及自我管理

Fatigue in ankylosing spondylitis: causes, consequences and self-management.

作者信息

Farren Wendy, Goodacre Lynne, Stigant Mark

机构信息

North Cumbria University Hospitals NHS Trust Carlisle, UK.

出版信息

Musculoskeletal Care. 2013 Mar;11(1):39-50. doi: 10.1002/msc.1029. Epub 2012 Jul 24.

Abstract

OBJECTIVES

To explore the perceived causes, consequences and management of fatigue in ankylosing spondylitis (AS).

METHODS

In this single-cohort qualitative study, ten participants completed a seven-day diary and participated in a semi-structured interview exploring possible causes, consequences and self-management of fatigue. Interviews were recorded, transcribed and analysed using 'framework' analysis. Ethical approval was obtained.

RESULTS

Three themes emerged: patterns and causes, consequences and management of fatigue. While patients' descriptions of fatigue were similar, the patterns and perceived causes of fatigue varied between individuals. Fatigue impacted on social life, relationships and work. Two approaches to fatigue management were observed: help and support from others and self-management, with four participants having sought medical help for fatigue.

CONCLUSIONS

The study suggested that fatigue has a negative impact on quality of life in people with AS. Future practice should include a comprehensive fatigue assessment and the development of treatment programmes directed at enhancing self-management techniques.

摘要

目的

探讨强直性脊柱炎(AS)患者疲劳感的感知原因、后果及应对方法。

方法

在这项单队列定性研究中,10名参与者完成了一份为期7天的日记,并参与了一次半结构化访谈,探讨疲劳的可能原因、后果及自我管理方法。访谈进行了录音、转录,并采用“框架”分析法进行分析。研究获得了伦理批准。

结果

出现了三个主题:疲劳的模式与原因、后果及应对方法。虽然患者对疲劳的描述相似,但疲劳的模式和感知到的原因因人而异。疲劳对社交生活、人际关系和工作产生了影响。观察到两种应对疲劳的方法:他人的帮助与支持以及自我管理,有4名参与者曾因疲劳寻求医疗帮助。

结论

该研究表明,疲劳对AS患者的生活质量有负面影响。未来的实践应包括全面的疲劳评估以及制定旨在增强自我管理技巧的治疗方案。

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