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患有乳腺癌的母亲及其子女:关于以家庭为导向的肿瘤康复项目“共同康复”有效性的初步结果

[Mothers with breast cancer and their children: initial results regarding the effectiveness of the family oriented oncological rehabilitation program "gemeinsam gesund werden"].

作者信息

John Katja, Becker Katja, Mattejat Fritz

机构信息

Klinik für Kinder- und Jugendpsychiatrie und -psychotherapie, Marburg.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 2010;59(5):333-58. doi: 10.13109/prkk.2010.59.5.333.

Abstract

When a parent has a serious somatic illness, children suffer grave distress, their risk to develop a mental disorder increases. Sick mothers, in comparison to patients without children, experience additional strain, e. g. because they worry about their children. Although many studies focus on the quality of life of breast cancer patients, little is known about the special situation of young mothers with breast cancer. Currently, a prospective study with four assessment points (pre, post, 3- and 12-months-follow-up) is conducted on a large sample of women taking part in the family-oriented inpatient rehabilitation program "gemeinsam gesund werden'. In this paper a longitudinal sample of 173 women and 153 children, their quality of life and psychological impairment prior to, after and in the course of one year after the rehabilitation is presented. Compared to the general population, the children as well as the mothers are considerably impaired, especially in regard to Psychological Health/Emotional Functioning. These impairments improve markedly within the survey period. One year after the rehabilitation, the children show no more impairment than the reference groups. The mothers improve significantly as well, however, after one year their quality of life scores are still lower than those of the general population. In conclusion, a considerable impairment of the analyzed group of mothers with breast cancer and their children, the necessity of special supportive measures as well as the effectiveness of the model rehabilitation program can be shown.

摘要

当父母一方患有严重的躯体疾病时,孩子会遭受极大的痛苦,他们患精神障碍的风险也会增加。与没有孩子的患者相比,患病的母亲会承受额外的压力,例如因为她们担心自己的孩子。尽管许多研究关注乳腺癌患者的生活质量,但对于患有乳腺癌的年轻母亲的特殊情况却知之甚少。目前,一项针对参与以家庭为导向的住院康复项目“共同康复”的大量女性样本进行的前瞻性研究,设置了四个评估点(术前、术后、3个月和12个月随访)。本文呈现了173名女性和153名儿童的纵向样本,以及他们在康复前、康复后和康复后一年中的生活质量和心理损伤情况。与一般人群相比,孩子和母亲都受到了相当大的损伤,尤其是在心理健康/情绪功能方面。这些损伤在调查期间有显著改善。康复一年后,孩子的损伤程度不再高于参照组。母亲们也有显著改善,然而,一年后她们的生活质量得分仍低于一般人群。总之,研究表明患有乳腺癌的母亲及其孩子这一被分析群体受到了相当大的损伤,需要特殊的支持措施,同时该模式康复项目是有效的。

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