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1
Compassion fatigue: what is it? Why does it matter? Recognizing the symptoms, acknowledging the impact, developing the tools to prevent compassion fatigue, and strengthen the professional already suffering from the effects.同情疲劳：它是什么？为何重要？识别症状，认识影响，开发预防同情疲劳的工具，并帮助已经受其影响的专业人员恢复元气。
Am J Hosp Palliat Care. 2010 Jun;27(4):239-42. doi: 10.1177/1049909109354096. Epub 2010 Jan 14.
2
Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology.实践参数更新：肌萎缩侧索硬化症患者的护理：药物、营养和呼吸治疗（循证综述）：美国神经病学学会质量标准小组委员会报告
Neurology. 2009 Oct 13;73(15):1218-26. doi: 10.1212/WNL.0b013e3181bc0141.
3
Consensus criteria for the diagnosis of frontotemporal cognitive and behavioural syndromes in amyotrophic lateral sclerosis.肌萎缩侧索硬化症额颞叶认知和行为综合征诊断的共识标准。
Amyotroph Lateral Scler. 2009 Jun;10(3):131-46. doi: 10.1080/17482960802654364.
4
Preference for place of care and place of death in palliative care: are these different questions?姑息治疗中对护理地点和死亡地点的偏好：这是不同的问题吗？
Palliat Med. 2008 Oct;22(7):787-95. doi: 10.1177/0269216308092287. Epub 2008 Aug 28.
5
Cognitive impairment in amyotrophic lateral sclerosis.肌萎缩侧索硬化症中的认知障碍。
Lancet Neurol. 2007 Nov;6(11):994-1003. doi: 10.1016/S1474-4422(07)70265-X.
6
Management of respiration in MND/ALS patients: an evidence based review.运动神经元病/肌萎缩侧索硬化症患者的呼吸管理：一项基于证据的综述。
Amyotroph Lateral Scler. 2006 Mar;7(1):5-15. doi: 10.1080/14660820510043235.
7
Effects of non-invasive ventilation on survival and quality of life in patients with amyotrophic lateral sclerosis: a randomised controlled trial.无创通气对肌萎缩侧索硬化症患者生存率和生活质量的影响：一项随机对照试验。
Lancet Neurol. 2006 Feb;5(2):140-7. doi: 10.1016/S1474-4422(05)70326-4.
8
Nutritional management in MND/ALS patients: an evidence based review.运动神经元病/肌萎缩侧索硬化症患者的营养管理：一项基于证据的综述
Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 Jun;5(2):72-83. doi: 10.1080/14660820410020349.
9
ALS patients on TPPV: totally locked-in state, neurologic findings and ethical implications.接受经皮经气管正压通气的肌萎缩侧索硬化症患者：完全闭锁状态、神经学表现及伦理意义
Neurology. 2003 Jul 8;61(1):135-7. doi: 10.1212/01.wnl.0000069925.02052.1f.
10
Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands.荷兰肌萎缩侧索硬化症患者中的安乐死和医生协助自杀
N Engl J Med. 2002 May 23;346(21):1638-44. doi: 10.1056/NEJMsa012739.

Some difficult decisions in ALS/MND.

作者信息

Oliver David J, Turner Martin R

机构信息

Wisdom Hospice, Rochester, Kent, UK.

出版信息

Amyotroph Lateral Scler. 2010 Aug;11(4):339-43. doi: 10.3109/17482968.2010.487532.

DOI:10.3109/17482968.2010.487532
PMID:20550485
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3182548/
Abstract
摘要