电子患者自我评估和管理 (SAM)：癌症生存者管理的新框架。

BACKGROUND

We propose a novel framework for management of cancer survivorship: electronic patient Self-Assessment and Management (SAM). SAM is a framework for transfer of information to and from patients in such a way as to increase both the patient's and the health care provider's understanding of the patient's progress, and to help ensure that patient care follows best practice.

METHODS

Patients who participate in the SAM system are contacted by email at regular intervals and asked to complete validated questionnaires online. Patient responses on these questionnaires are then analyzed in order to provide patients with real-time, online information about their progress and to provide them with tailored and standardized medical advice. Patient-level data from the questionnaires are ported in real time to the patient's health care provider to be uploaded to clinic notes. An initial version of SAM has been developed at Memorial Sloan-Kettering Cancer Center (MSKCC) and the University of California, San Francisco (UCSF) for aiding the clinical management of patients after surgery for prostate cancer.

RESULTS

Pilot testing at MSKCC and UCSF suggests that implementation of SAM systems are feasible, with no major problems with compliance (> 70% response rate) or security.

CONCLUSION

SAM is a conceptually simple framework for passing information to and from patients in such a way as to increase both the patient's and the health care provider's understanding of the patient's progress, and to help ensure that patient care follows best practice.

背景

我们提出了一种新的癌症生存管理框架：电子患者自我评估和管理（SAM）。SAM 是一种将信息传递给患者并从患者那里获取信息的框架，以增加患者和医疗服务提供者对患者进展的了解，并帮助确保患者护理遵循最佳实践。

方法

定期通过电子邮件联系参与 SAM 系统的患者，并要求他们在线完成经过验证的问卷。然后分析患者对这些问卷的回答，以便为患者提供有关其进展的实时在线信息，并为他们提供量身定制和标准化的医疗建议。从问卷中获取的患者数据实时传输到患者的医疗服务提供者，以便上传到诊所记录中。MSKCC 和 UCSF 已经开发了 SAM 的初始版本，用于辅助前列腺癌手术后患者的临床管理。