Ruland Cornelia M, Brynhi Haakon, Andersen Roar, Bryhni Tore
Center for Shared Decision Making and Nursing Research, Rikshospitalet Medical Center, Oslo, Norway.
Stud Health Technol Inform. 2008;136:57-62.
Improving Shared Decision Making (SDM) and patient-provider communication, and providing all citizens with equal access to health information has become a high priority health policy goal. In this interdisciplinary, international research collaboration we develop and test CONNECT (Care Online: Novel Networks to Enhance Communication and Treatment), a patient portal that integrates a suite of context-sensitive patient communication and information tools into a patient-clinician shared electronic health record that patients can use seamlessly through heterogeneous networks from different locations (home, hospital, doctor's office). In this paper we present methods used to develop CONNECT; how to safeguard data security and confidentiality and adapt user interfaces to different users, devices and contexts of use; as well as ensure safe and efficient data transfer through heterogeneous networks; and critical success factors and challenges.
改善共同决策（SDM）以及患者与医疗服务提供者之间的沟通，并为所有公民提供平等获取健康信息的机会，已成为一项高度优先的卫生政策目标。在这项跨学科的国际研究合作中，我们开发并测试了CONNECT（在线护理：增强沟通与治疗的新型网络），这是一个患者门户，它将一套上下文敏感的患者沟通和信息工具集成到患者与临床医生共享的电子健康记录中，患者可以通过来自不同地点（家中、医院、医生办公室）的异构网络无缝使用该记录。在本文中，我们介绍了用于开发CONNECT的方法；如何保障数据安全和保密性，以及如何使用户界面适应不同用户、设备和使用环境；以及如何确保通过异构网络进行安全高效的数据传输；还有关键的成功因素和挑战。
