National Data Bank for Rheumatic Diseases, University of Kansas School of Medicine, 1035 N. Emporia, Suite 288, Wichita, KS 67214, USA.
Rheumatology (Oxford). 2011 Jan;50(1):16-24. doi: 10.1093/rheumatology/keq155. Epub 2010 Jun 21.
The National Data Bank (NDB) for rheumatic diseases is a patient-based multi-disease, multi-purpose rheumatic disease registry that has been used primarily to study patients with RA, SLE, FM and OA. It enrols patients from the community, follows up with questionnaires and validates key patient data using medical records. Rheumatologist-written programs make NDB data immediately available to analysts. The NDB has been used to develop and validate diagnostic criteria, develop new questionnaires, describe illness and comorbid disease, assesses disease outcomes and the effect of therapeutic interventions, and measure costs and cost-effectiveness.
国家风湿病数据银行（NDB）是一个基于患者的多疾病、多用途的风湿病数据库，主要用于研究类风湿关节炎、系统性红斑狼疮、纤维肌痛和骨关节炎患者。它从社区招募患者，通过问卷进行随访，并使用病历验证关键患者数据。风湿病医师编写的程序使 NDB 数据能够立即提供给分析人员。NDB 已被用于开发和验证诊断标准、开发新的问卷、描述疾病和合并症、评估疾病结局和治疗干预效果，以及衡量成本和成本效益。
