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制度化的忽视:消除老年痴呆症患者身份的政策背景与语言使用

Institutionalized ghosting: policy contexts and language use in erasing the person with Alzheimer's.

作者信息

Davis Boyd H, Pope Charlene

机构信息

255A Fretwell, University of North Carolina-Charlotte, 9201 University City Drive, Charlotte, NC 28212, USA,

出版信息

Lang Policy. 2010 Feb;9(1):29-44. doi: 10.1007/s10993-009-9153-8.

Abstract

The ordinary social engagement of human life would not usually be considered an arena for language policy. Yet clinical evidence mounts that social interaction improves our lives as we age. Since social engagement decreases cardiovascular risks (Ramsay et al. in Ann Epidemiol 18:476-483, 2008) and delays memory loss among those living in communities (Ertel et al. in Am J Public Health 98:1215-1220, 2008), practices that prohibit social interaction threaten human well-being. For persons who have Alzheimer's disease (AD), social interaction continues to play an integral part in cognitive function and delays in memory loss, according to a longitudinal study of social networks (Bennett et al. in Lancet Neurol 5:406-412, 2007). Increasingly, person-centered care that promotes social engagement for those with AD is promoted as an institutional policy to improve outcomes of dementia care (Edvardsson et al. in Int Psychogeriatr 20:764-776, 2008). Yet the training of caregivers may neither reflect person-centered care nor include attention to communication, suggesting covert policies in practice.

摘要

人类生活中的日常社交活动通常不会被视为语言政策的领域。然而,越来越多的临床证据表明,随着年龄的增长,社交互动会改善我们的生活。由于社交活动能降低心血管疾病风险(拉姆齐等人,《美国流行病学杂志》,2008年,第18卷,第476 - 483页),并延缓社区居民的记忆力衰退(厄特尔等人,《美国公共卫生杂志》,2008年,第98卷,第1215 - 1220页),因此禁止社交互动的做法会威胁人类福祉。根据一项关于社交网络的纵向研究(贝内特等人,《柳叶刀神经病学》,2007年,第5卷,第406 - 412页),对于患有阿尔茨海默病(AD)的人来说,社交互动在认知功能中仍起着不可或缺的作用,并能延缓记忆力衰退。越来越多以患者为中心的护理方式被作为一项机构政策加以推广,这种护理方式旨在促进AD患者的社交活动,以改善痴呆症护理的效果(爱德华松等人,《国际老年精神病学杂志》,2008年,第20卷,第764 - 776页)。然而,护理人员的培训可能既没有体现以患者为中心的护理理念,也没有关注沟通问题,这表明在实际操作中存在隐性政策。

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