赋予他们声音：痴呆症患者叙事自主性面临的挑战
Giving Them a Voice: Challenges to Narrative Agency in People with Dementia.
作者信息
Villar Feliciano, Serrat Rodrigo, Bravo-Segal Stephany
机构信息
Cognition, Development, and Educational Psychology Department, University of Barcelona, 08035 Barcelona, Spain.
出版信息
Geriatrics (Basel). 2019 Feb 12;4(1):20. doi: 10.3390/geriatrics4010020.
In this paper, we argue that the capacity for narrative agency is significantly compromised in individuals with dementia due to at least three factors: (a) Dementia itself, which causes increasing difficulties in constructing and articulating coherent and meaningful stories, and sharing them with others; (b) cultural narratives about dementia, which promote an extremely negative and pessimistic view of those with the disease; and (c) the convergence of these two last factors, which can lead to caregiving interactions that do not support storytelling and can even stop people with dementia from telling stories. We highlight the importance of narrative care, which involves interventions that focus on the person and their unique life narrative. In narrative care, people with dementia are treated not as impaired patients defined by the disease, but as human beings. In doing so, people with dementia can have their own voices back, which is silenced and discredited so many times.
在本文中，我们认为，由于至少三个因素，痴呆症患者的叙事能动性能力受到了严重损害：（a）痴呆症本身，它导致患者在构建和表达连贯且有意义的故事以及与他人分享这些故事方面越来越困难；（b）关于痴呆症的文化叙事，它助长了对患有该疾病者极其负面和悲观的看法；（c）最后这两个因素的交汇，这可能导致护理互动不支持讲故事，甚至会阻止痴呆症患者讲故事。我们强调叙事护理的重要性，它涉及专注于个体及其独特生活叙事的干预措施。在叙事护理中，痴呆症患者不被视为由疾病定义的受损患者，而是被视为人。这样做，痴呆症患者可以找回他们自己的声音，而这声音已被压制和诋毁了太多次。
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