Hupcey Judith E, Fenstermacher Kimberly, Kitko Lisa, Penrod Janice
The Pennsylvania State University, Hershey, 17033, USA.
Clin Nurs Res. 2010 Aug;19(3):211-29. doi: 10.1177/1054773810371119.
The incidence of heart failure continues to rise as innovative treatments are developed. Despite life-prolonging interventions, morbidity and mortality in patients younger than 65 remain high. Few studies have focused on this younger cohort and/or their family caregivers as they navigate the complex illness trajectories manifested in heart failure. Instrumental case studies were employed to present exemplars for each of the five identified heart failure trajectories. Culling data from a longitudinal study of female spousal caregivers, each case study represents a wife's discussion of caring for a husband (<65 years) in response to the husband's changing heart failure trajectory. The goal of medical stability and the notion of uncertainty permeate throughout the case studies. Suggestions for supporting these wives are presented.
随着创新治疗方法的不断发展,心力衰竭的发病率持续上升。尽管有延长生命的干预措施,但65岁以下患者的发病率和死亡率仍然很高。很少有研究关注这个较年轻的群体和/或他们的家庭护理人员,因为他们要应对心力衰竭所表现出的复杂疾病轨迹。采用工具性案例研究来呈现所确定的五种心力衰竭轨迹中的每一种的范例。从一项针对女性配偶护理人员的纵向研究中筛选数据,每个案例研究都代表了一位妻子对照顾丈夫(<65岁)应对其不断变化的心力衰竭轨迹的讨论。医疗稳定性的目标和不确定性的概念贯穿于整个案例研究。文中还提出了支持这些妻子的建议。