National Institute of Public Health, SI-1000 Ljubljana, Slovenia.
General Hospital Murska Sobota, SI-9000 Murska Sobota, Slovenia.
Int J Environ Res Public Health. 2020 Apr 13;17(8):2666. doi: 10.3390/ijerph17082666.
Due to the complexity of heart failure (HF) and its treatment process, a high level of patient and informal caregiver engagement is required for management results. We aimed to explore the views of HF patients, informal caregivers, and healthcare professionals about personal experiences, perceived needs, and barriers to optimal HF management. A qualitative study using semi-structured interviews with HF patients ( = 32), their informal caregivers ( = 21), and healthcare professionals ( = 5) was conducted in the outpatient HF clinic in Slovenia in 2018. A content analysis method was used to analyze the data. Negative emotional response to disease and its limitations (especially the inability to continue with work) and changes in family roles were the most prevalent topics regarding the impact of HF on livelihood. Among the most common barriers to HF self-care, were the difficulties in changing lifestyle, financial difficulties due to the disease, traditional cuisine/lack of knowledge regarding a healthy diet and lack of self-confidence regarding physical activity. Despite psychological and social difficulties due to HF being highlighted by patients and informal caregivers, only healthcare professionals emphasized the need to address psychosocial aspects of care in HF management. Established differences could inform the implementation of necessary support mechanisms in HF management.
由于心力衰竭 (HF) 的复杂性及其治疗过程，管理结果需要患者和非正式照顾者高度参与。我们旨在探讨 HF 患者、非正式照顾者和医疗保健专业人员对个人经历、感知需求和优化 HF 管理障碍的看法。2018 年，在斯洛文尼亚的门诊 HF 诊所进行了一项使用半结构式访谈的定性研究，参与者包括 HF 患者（=32）、他们的非正式照顾者（=21）和医疗保健专业人员（=5）。使用内容分析方法对数据进行分析。疾病及其限制（尤其是无法继续工作）对生活的负面影响以及家庭角色的变化是 HF 对生计影响的最常见话题。HF 自我护理最常见的障碍包括改变生活方式的困难、疾病导致的经济困难、传统饮食/缺乏健康饮食知识以及对身体活动缺乏自信。尽管 HF 给患者和非正式照顾者带来了心理和社会困难，但只有医疗保健专业人员强调需要在 HF 管理中解决心理社会方面的护理需求。已确定的差异可以为 HF 管理中必要支持机制的实施提供信息。
