Donelly M, Hillman A, Stancliffe R J, Knox M, Whitaker L, Parmenter T R
Faculty of Health and Human Sciences, Southern Cross University, Tweed Heads, NSW, Australia.
Work. 2010;36(2):227-37. doi: 10.3233/WOR-2010-1023.
Being in paid employment is socially valued, and is linked to health, financial security and time use. Issues arising from a lack of occupational choice and control, and from diminished role partnerships are particularly problematic in the lives of people with an intellectual disability. Informal support networks are shown to influence work opportunities for people without disabilities, but their impact on the work experiences of people with disability has not been thoroughly explored. The experience of 'work' and preparation for work was explored with a group of four people with an intellectual disability (the participants) and the key members of their informal support networks (network members) in New South Wales, Australia. Network members and participants were interviewed and participant observations of work and other activities were undertaken. Data analysis included open, conceptual and thematic coding. Data analysis software assisted in managing the large datasets across multiple team members. The insight and actions of network members created and sustained the employment and support opportunities that effectively matched the needs and interests of the participants. Recommendations for future research are outlined.
有薪工作在社会上受到重视,并且与健康、经济保障和时间利用相关。缺乏职业选择和控制权以及角色伙伴关系减少所引发的问题,在智障人士的生活中尤为突出。研究表明,非正式支持网络会影响非残疾人士的工作机会,但它们对残疾人士工作经历的影响尚未得到充分探讨。在澳大利亚新南威尔士州,我们与四名智障人士(参与者)及其非正式支持网络的关键成员(网络成员)组成的小组一起,探讨了“工作”经历和工作准备情况。对网络成员和参与者进行了访谈,并对工作及其他活动进行了参与观察。数据分析包括开放式、概念式和主题式编码。数据分析软件协助管理跨多个团队成员的大型数据集。网络成员的见解和行动创造并维持了与参与者的需求和兴趣有效匹配的就业和支持机会。文中概述了对未来研究的建议。