University of South Australia, School of Nursing and Midwifery, City East, Adelaide 5000, South Australia.
Midwifery. 2011 Oct;27(5):628-33. doi: 10.1016/j.midw.2010.06.019. Epub 2010 Aug 10.
to gain an in-depth understanding of subsequent children's experiences of being born into and raised in a family following an infant death.
an exploratory qualitative study.
semi-structured interview in the participants' homes. Data were collected over a five-month period in 2009 and analysed using thematic analysis.
a purposive sample of 10 subsequent children (five boys and five girls) was used. Children whose parents had accessed the support services offered by two bereavement support agencies were recruited. Participants were asked to describe their experiences of being a subsequent child. Interviews were conducted when the subsequent child was at least 13 years of age.
all participants spent time describing how they felt about being a subsequent child. They described how they had experienced life as a subsequent child, how they considered others felt about them (especially their mother), and finally how they felt about their deceased sibling.
all participants in this study provided a picture of emotional well-being. They were aware of their family history, and all appreciated the grief and loss which their parents had suffered. However, they did not believe that this had impacted negatively on them; rather, most talked about positive effects including feeling loved and special because of the circumstances resulting in their birth. Even those who recognised that they may not have been born had their sibling lived accepted this and appeared to be emotionally secure and well adjusted. These findings suggest that intervention with bereaved parents at the time of the perinatal/infant death and soon after is beneficial to the experiences of the subsequent child. Further research to determine the nature and extent of this benefit is warranted.
深入了解婴儿死亡后,其在家庭中出生和成长的后续儿童的经历。
探索性定性研究。
在参与者家中进行半结构式访谈。数据于 2009 年收集了五个月,使用主题分析进行分析。
使用了一个有目的的后续儿童样本(5 名男孩和 5 名女孩)。招募了那些父母已经接受了两个丧亲支持机构提供的支持服务的孩子。要求参与者描述他们作为后续儿童的经历。访谈是在后续儿童至少 13 岁时进行的。
所有参与者都花时间描述了他们作为后续儿童的感受。他们描述了他们作为后续儿童的生活经历,他们如何看待他人对他们(尤其是他们的母亲)的感受,最后描述了他们对已故兄弟姐妹的感受。
本研究中的所有参与者都描绘了情感健康的图景。他们了解自己的家族史,所有人都对父母所经历的悲痛和失落表示感激。然而,他们并不认为这对他们产生了负面影响;相反,大多数人谈到了积极的影响,包括因为他们出生的情况而感到被爱和特别。即使那些认识到如果他们的兄弟姐妹还活着,他们可能不会出生的人也接受了这一点,并且似乎情绪稳定,适应良好。这些发现表明,在围产期/婴儿死亡时和之后不久对丧亲父母进行干预对后续儿童的经历有益。需要进一步研究以确定这种益处的性质和程度。