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消费者对健康信息交换和个人健康记录的支持:区域卫生信息组织调查。

Consumer support for health information exchange and personal health records: a regional health information organization survey.

机构信息

Department of Pediatrics, Weill Cornell Medical College, New York, NY, USA.

出版信息

J Med Syst. 2012 Jun;36(3):1043-52. doi: 10.1007/s10916-010-9566-0. Epub 2010 Jul 29.

DOI:10.1007/s10916-010-9566-0
PMID:20703633
Abstract

In order to characterize consumer support for electronic health information exchange (HIE) and personal health records (PHRs) in a community where HIE is underway, we conducted a survey of English speaking adults who visited primary care practices participating in a regional community-wide clinical data exchange, during August, 2008. Amongst the 117 respondents, a majority supported physicians' use of HIE (83%) or expressed interest in potentially using PHRs (76%). Consumers' comfort sending personal information electronically over the Internet and their perceptions regarding the potential benefits of HIE were independently associated with their support for HIE. Consumers' prior experience using the Internet to manage their healthcare, perceptions regarding the potential benefits of PHRs and college education were independently associated with potential PHR use. Bolstering consumer support for HIE and PHRs will require addressing privacy and security concerns, demonstrating clinical benefits, and reaching out to those who are less educated and computer literate.

摘要

为了描述在电子健康信息交换(HIE)和个人健康记录(PHR)正在进行的社区中,消费者对其的支持情况,我们在 2008 年 8 月对参加区域性社区范围临床数据交换的初级保健诊所的英语使用者进行了调查。在 117 名受访者中,大多数人支持医生使用 HIE(83%)或表示有兴趣可能使用 PHR(76%)。消费者通过互联网发送个人信息的舒适度及其对 HIE 的潜在好处的看法与他们对 HIE 的支持独立相关。消费者之前使用互联网管理其医疗保健的经验、对 PHR 潜在好处的看法以及大学教育与潜在的 PHR 使用独立相关。增强消费者对 HIE 和 PHR 的支持需要解决隐私和安全问题,展示临床效益,并吸引那些受教育程度较低和计算机知识较少的人群。

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J Gen Intern Med. 2011 Sep;26(9):1019-26. doi: 10.1007/s11606-011-1733-6. Epub 2011 May 17.
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A patient survey assessing the awareness and acceptability of the emergency care summary and its consent model in Scotland.一项评估苏格兰急诊护理摘要及其同意模式的知晓度和可接受性的患者调查。
Perspect Health Inf Manag. 2010 Apr 1;7(Spring):1e.
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Health information exchange: persistent challenges and new strategies.
患者视角下影响其在英格兰使用电子个人健康记录的因素分析:定性研究。
J Med Internet Res. 2021 Jan 13;23(1):e17500. doi: 10.2196/17500.
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Non-Hispanic White Mothers' Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel.非西班牙裔白人母亲与研究人员分享个人健康数据的意愿:来自选择加入小组的调查结果。
J Particip Med. 2020 May 15;12(2):e14062. doi: 10.2196/14062.
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Consumer perceptions of health IT utilization and benefits.消费者对健康信息技术使用情况及益处的认知。
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The Impacts of the Perceived Transparency of Privacy Policies and Trust in Providers for Building Trust in Health Information Exchange: Empirical Study.隐私政策感知透明度及对提供者的信任对建立健康信息交换信任的影响:实证研究
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