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Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.开展一项关于患者对广泛同意看法的大型多地点调查：挑战与解决方案。
BMC Med Res Methodol. 2016 Nov 24;16(1):162. doi: 10.1186/s12874-016-0263-7.

本文引用的文献

1
Public and biobank participant attitudes toward genetic research participation and data sharing.公众和生物样本库参与者对基因研究参与和数据共享的态度。
Public Health Genomics. 2010;13(6):368-77. doi: 10.1159/000276767. Epub 2010 Jan 15.
2
Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection.对基因研究审查的态度：一项针对参与人类受试者保护的专业人员的全国性调查结果。
J Empir Res Hum Res Ethics. 2010 Mar;5(1):83-91. doi: 10.1525/jer.2010.5.1.83.
3
A new statistic and its power to infer membership in a genome-wide association study using genotype frequencies.一种新的统计量及其在全基因组关联研究中利用基因型频率推断成员关系的能力。
Nat Genet. 2009 Nov;41(11):1253-7. doi: 10.1038/ng.455. Epub 2009 Oct 4.
4
Common consent.共同认可
Nature. 2009 Aug 20;460(7258):933. doi: 10.1038/460933a.
5
Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.向研究参与者披露研究结果：一项关于青少年及其父母需求与态度的试点研究。
Paediatr Child Health. 2005 Jul;10(6):332-4.
6
Assessing the understanding of biobank participants.评估生物样本库参与者的理解情况。
Am J Med Genet A. 2009 Feb;149A(2):188-98. doi: 10.1002/ajmg.a.32635.
7
Public expectations for return of results from large-cohort genetic research.公众对大型队列基因研究结果反馈的期望。
Am J Bioeth. 2008 Nov;8(11):36-43. doi: 10.1080/15265160802513093.
8
Subjects matter: a survey of public opinions about a large genetic cohort study.主题事项：关于一项大型基因队列研究的公众意见调查。
Genet Med. 2008 Nov;10(11):831-9. doi: 10.1097/GIM.0b013e31818bb3ab.
9
Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project.基于人群的DNA生物样本库的社区咨询与沟通：马什菲尔德诊所个性化医学研究项目
Am J Med Genet A. 2008 Dec 1;146A(23):3026-33. doi: 10.1002/ajmg.a.32559.
10
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.使用高密度单核苷酸多态性（SNP）基因分型微阵列解析对高度复杂混合物贡献微量DNA的个体。
PLoS Genet. 2008 Aug 29;4(8):e1000167. doi: 10.1371/journal.pgen.1000167.

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium.

作者信息

Clayton Ellen Wright, Smith Maureen, Fullerton Stephanie M, Burke Wylie, McCarty Catherine A, Koenig Barbara A, McGuire Amy L, Beskow Laura M, Dressler Lynn, Lemke Amy A, Ramos Erin M, Rodriguez Laura Lyman

机构信息

Center for Biomedical Ethics and Society, Vanderbilt University, Nashville, TN, USA.

出版信息

Genet Med. 2010 Oct;12(10):616-20. doi: 10.1097/GIM.0b013e3181efdbd0.

DOI:10.1097/GIM.0b013e3181efdbd0
PMID:20733502
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3090678/
Abstract
摘要